Not sure which forum to put this it partly involves my mum so here goes. I was diagnosed myself 15 yrs ago aged 27, had double mast 2yrs later after recocurrance . every thing was fine coped ok great family support went on to have 2 little girls . life looking good. 5 yrs ago my mum was diagnosed ,she had recoccurance a few yrs later at that point genetic testing was suggested. We discovered we carried brca1 gene both of us had oopherectomy . About 18 months ago mum discovered secondaries in liver now has spread to her bones , prognosis is not good though she is fighting all the way. 1 yr ago my sister in law died from breast cancer at 46. My problem is im struggling to cope with the thought of losing my mum ,feeling very low and feel i could quite easily slip into depression . I dont want to feel like this I have alot of good things in life (my kids and husband are my world) I know I have done all I can to prevent the cancer returning but after watching my sister in law die and now my mum the fear of not being around to see my girls grow up is almost overwelming. I also worry about my girls inheriting this gene and what they have to face in their future although I have hold onto advancements in treatment for them.(they are 9 and 6) I have few people I can talk to , I dont like to go on all the time to my Husband I dont think he has grieved for his sister properly yet. Ive never felt this low before even when I was diag myself. When its you going through it all you some how just cope but i feel im falling to pieces now and I want to make the most of the time I have with my mum left good , there will be all the time in the world to be sad when shes gone. Sorry to go on but I want to get help before I lose it completely.
I am sorry to read that you are feeling so worried about your Mum and are feeling so low, it sounds as though you have been dealing with a difficult situation for some time. Please call our helpliners for a chat with one of the team, they can offer you support, information and advice and are there to lend a 'listening ear' to you. The number is 0808 800 6000 Mon-Fri 9am-5pm and Sat 9am-2pm.
Sorry that you're going through a really hard time at the moment.
I'm waiting for my genetic testing as my mum and her sister both had breast cancer (my mum died when she was 46). I was diagnosed 13 years ago and my cancer spread to both my liver and spine in 2004.
I know, without a shadow of doubt, that if mine had developed into mets shortly after my initial diagnosis that I wouldn't be here now.
I can't offer you a lot of support but just really to say that there are a lot more treatments and advances in cancer now than there was even 10 years ago and a lot of us are still living proof of that.
I know when I was first diagnosed with mets I just thought 'well, that's it, I won't see the year out' and I think that's a very natural reaction. Hopefully your mum will respond to whatever treatment they offer her.