I have pain in various bones, Ive been on tamoxifen for nearly a yer and was on arimidex for a year before that. The pain with arimidex seemed to be morein the joints. Now i get pain right down my shins and in my arms. im going to GP next week.
Hate to sound like the prophet of doom but my advice would be check it out, get scanned In my case unfortunately i have just been dx with kidney cancer following bone scans etc i had lower back pain no relief from brufen etc In the light of day, thanks to a diligent gp, it seems at an early stage and am having kidney removed 8th aug I am trying to be positive and not dwell on the why me? As my daughter said, i am one of the lucky unlucky ones to have two cancer diagnosis in less than three years but fortunately both at an early stage Just wanted to say chances are it will be nothing to worry about , but get it followed up Good luck
all the very best for the 23rd. I will be thinking of you and keeping everything crossed for you,
Take care and be sure to let me know how you get on. I'm starting to get really worried abou my back ache and stuff now so roll on the 24th when I can get some action!
Just to let you know I'm thinking of you today, let me know how it all goes... yesterday went okay, its just the waiting now,next week i get the results. My auntie was diangosed last week with bone cancer, 3 years since her BC. she has a large growth on her spine, they are going to do rads immediately and there is talk of chemo again. Why do we have to suffer more than once? I feel so frustrated and bitter at the moment but I know we have to remain positive. I do tell her about all the positive stories on this site and it has boosted the family but there is still a 'niggle' at the back of your mind.
Hope you are all well.
Take care and remember to let me know how you get on Kelly.
I am so sorry I haven't replied to your message sooner. I'm glad your bone scan went ok and am keeping everything crossed for you that the results will be good. What day next week will you be getting them?
I saw my onc and he has referred me for a brain scan and bone scan. Quite pleased as thats what I was hoping for and I didn't have to battle at all as he took my concerns very seriously. Glad I am getting a brain scan in particular as I have never had one those at all, not even when first diagnosed. Wondering if the bone scan will show any changes in the 'hot spots' that showed up on the one I had last year. Guess I'll have to wait and see!
So, playing the waiting game once again now. Soon as I have had both scans (they're done at different hosps) I have got to ring my oncs secretary and tell her so she can request the results asap. Then, IF there is anything sinister I will be getting a call asking me to go and see the onc! Otherwise I will be sent an appt for a review in 6 months. Once I've had both scans I know I will be totally bricking it every time the phone rings!!
I wish you all the luck in the world for your results appt next week,
Glad you are getting your scans, I think, if nothing else, the results will hopefully put our minds at rest...fingers crossed eh !!! I have just got off the phone to my auntie who has now found out today that she has another lump in her other breast (she had mastectomy previously), I can't believe this and she is so positive, so very brave, i don't know what I would do. she is 53 years old and i still think she is too young, this is a sod of a disease and it doesn;t care who it hits. I get the results of my scan tomorrow afternoon, I still have the pain and my legs etc are sore to touch around the bone areas so I think it will be a miracle if its not bone mets but we'll know soon enough. How long will you have to wait for your scan? I hate the waiting game, we just seem to wish our lives away.
Anyway, let me know how it all goes and I will let you know the results tomorrow !!!!
I'm so sorry I've not replied sooner! Blimey, I wonder if you've already had your results appt? Maybe you're there now?? Well, I have absolutely got everything crossed for you. I've not even had the dates for my scans through yet! The staff at the xray appts dept are on a massive bl**dy go slow at the mo! Have chased it up already and if I don't hear tomorrow then I'll get my nurse on the case. I still have the pain in my back, if anything its getting worse, so I certainly can't afford to be hanging around. I think the same as you (about mine that is!), that it'll be a miracle if its not bone mets. The longer it goes on the more convinced I become. My counsellor asked me the other day what my gut feeling was, and I said I thought it would turn out to be mets. I'm still playing the waiting game, and for a while yet, so you're more important right now! God I hope the news for you is good and you get that miracle.
What a shame about your auntie, is she gonna have to have more surgery and stuff? Its a bl**dy nightmare isn't it! My aunt was first diagnosed in her twenties and went years before having another reccurrence. I worry that is this our life now? Forever worried about it comin back?
Take care and be sure to let me know how you got on today as and when you get a chance,
Good news - its not bone mets !!!!!!! Yes, its a miracle !!!!! they are going to do an MRI as I still have the pain and if you press my legs there is immediate pain there too, so consultant is now wondering if it is something to do with my nerve endings...I don't understand but I am so pleased and relieved !!!
My auntie is doing okay, she is home from hospital and the new lump in her other breast is nothing to worry about. As for her bone mets, she is on a number of medication and seems to be doing ok, we are hoping the radiotherapy kicks in soon and that will make things easier for her.
Let me know how you get on, as soon as you've got your date etc.
Take care and I'll be keeping everything crossed for you.
thats great news and I'm so pleased for you!!!!! See, miracles do happen! What a relief for you. I'm properly chuffed for you I really am. I had my bone scan on thurs. Me being me I'm worried already, especially as the radiographer took loads of extra images of my spine and pelvis. Now playing the waiting game, aaarrrrgggghhhhh!!!
I'm so glad your auntie is doin well and that the new lump was nothing sinister,
After having my bc diagnosed more then three years ago, I am now on Aridimex. I suffer from pains in my back and my right hip. I am very unsure if I can put this down to side effects of Arimidex or if this is the start of bone mets developing. At my regular follow up with my onc in June, I was told that everything was fine. I then had a mammo and blood tests done. But the pains have become worse since that,
I went to see my GP today for a BP check and I mentioned the back pain. He had me take some blood samples, tumour markers like Alchalic Phosphatasis (S-ALP), and other tests. But he said he did that just to calm me down, he was pretty sure that everything was ok and that my pain was a result of anxiety and tense muscles.. He said that he would consider a scan if the bloodwork was not ok.
I thought that blood tests were absolutely no certain way of finding out if mets have occured and I asked him that. He said that iy was a good way to start.
I had a bone scan 1 1/2 years ago which was all clear. When I finished my chemo i Dec 05, I also had a scan, a bone marrow test and a liver scan. They were fine too. This was all part of a trial conducted at my hospital.
So now I am playing the waiting game like some of you. I have not told my husband or anyone else about these tests, so I feel quite alone with this, My only consellation ( ?spelling) is that when I take a small dose of benzodiazephines, the pain gets weaker. Perhaps it is my nerves playing up after all.
I do not know how to last until the following Friday, when I am going back to my GP for blood test results and following plans.
Have you heard anything yet? Sorry I've not checked but we've been on holiday and only just back. We had a disaster with the MRI, I tried three times but couldn't do it, I was too claustrophobic!!! Had a panic attack and no way was I going in that tunnel. It might seem silly but I hardly slept last night thinking about it. My oncologist is now on holiday for 3 weeks so we will wait and see what she says on her return.
My auntie is doing better, the lump in her other breast was nothing sinister - thank God !!!! She is back home now and they are sorting out the medications, trial and error I guess but she seems to be slowly improving which is good. she has now come to the conclusion that life can go on with bone mets and hers will...bless her.
Maia - have you had your results yet? I hope you are ok, let us know.
All my blood tests, including markers were perfect. I have had a few days with no pain at all after that. My GP and I agreed to wait and see for a month and then I'll come and see him again if I feel I need to.
Yesteday the pain was back. Now I will keep a "pain log" for the next month, to see if I can spot a pattern . (Weather, going to work, doing too much house work etc. etc.)
I am really scared of a scan, because obviously I am afraid of bad news. I know I can't handle that.
blimey what a nightmare you had with the MRI scan. I have never had to have one and I know that if I ever did I would defo freak out. There is now way they would be able to get me into that bloming tunnel without sedating me first! Hopefully your onc will be able to sort something else out for you when she gets back.
My bone scan results are in and amazingly there is "no eveidence of metasatatic disease in the bones"!! I was stunned and shocked to say the least when I was told that as I had totally convinced myself I had bone mets. So, got my brain scan on the 25th which will hopefuly come back clear too. Not so worried about this one as I do think my symptoms are due to the heart meds I'm on. My back pain has not suddenly dissappeared so I will be keeping a close eye on it.
I'm so pleased to hear your auntie is doing better. Thats great news.