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    • CommentAuthorBahons2
    • CommentTimeJul 3rd 2008 edited
     
    Dear All

    Just repeating my original post about the lymphoedema petition as it now has a 'home' of its own.

    'As a sufferer from from both breast cancer and lymphoedema (both arms!) I would like to draw your attention to a lymphoedema petition on the Downing St website. If you have developed this condition as a result of your cancer treatment (as I have), you may well feel disappointed that there is only very limited help available, that current treatment methods are rather primitive, that the condition remains incurable and that it can sometimes feel like the last straw after everything else that has happened. I know that many of you will still have more pressing issues on your minds (snap!), but if you do feel you would like to add your support to the petition, the link is:

    http://petitions.pm.gov.uk/lymphoedema/

    Only your name (no other details) will appear on the petition.

    Only UK residents/British citizens (expat is fine - there is a drop-down box to check for this) may sign.

    I don't expect miracles from this, but it is possible to add your voice to those calling for action on provision for lymphoedema in the UK (the lymphoedema charity, the Lymphoedema Support Network is one) by signing, if you'd like to'.

    The support and encouragement for this petition has been fantastic - thank you all verymuch.
    • CommentAuthorMarilf
    • CommentTimeJul 4th 2008
     
    Just signed the petition.

    Marilyn x
    • CommentAuthorBahons2
    • CommentTimeJul 4th 2008
     
    Thanks, Marilyn!

    S
    • CommentAuthorAnthi
    • CommentTimeJul 4th 2008
     
    Just signed this.
    Anthi x
    • CommentAuthorbuff40
    • CommentTimeJul 4th 2008
     
    Just signed and hubby in process of dong so too....thanks.
    As the PM has no influence in devolved matters such a Health and thus can only influence the NHS in England, do you know of any lobbying taking place in the Scottish Parliament?
    • CommentAuthorBahons2
    • CommentTimeJul 5th 2008
     
    Hi Buff40

    Thanks for signing!

    I do have a friend with lymphoedema who lives in Scotland who knows about these things, so I will ask her and let you know.

    S
    • CommentAuthorBahons2
    • CommentTimeJul 7th 2008
     
    The petition has now passed the 400 mark.

    Thanks again everyone.

    S
    • CommentAuthormallysally
    • CommentTimeJul 11th 2008
     
    SIGNED IT BE4

    SAL X
    • CommentAuthorNanna
    • CommentTimeAug 11th 2008
     
    Have just signed petition
    Nanna
    • CommentAuthorBahons2
    • CommentTimeAug 12th 2008
     
    Thanks, Nanna!

    X

    S
    • CommentAuthorjanneth
    • CommentTimeAug 21st 2008
     
    Just signed too. Great idea.
    J
    • CommentAuthorBahons2
    • CommentTimeAug 22nd 2008
     
    Thanks, Janneth!

    It won't be long, I think, before the petition reaches 500 signatures - an awful lot of them will be from people who use this site, which I think is fantastic, as so many of us here have a lot on our minds much of the time.

    X

    S
    • CommentAuthorBessieBoo
    • CommentTimeAug 22nd 2008
     
    Up to 468 I think, just signed
    • CommentAuthorBahons2
    • CommentTimeAug 24th 2008
     
    Thanks, BessieBoo!

    Had a peek at the petition this morning and it now at 470.

    X

    S
    • CommentAuthorlyndu
    • CommentTimeAug 24th 2008
     
    Signed and also passed it on to a community cancer centre I know of, so hopefully there may be a few more there.

    Lyn
    • CommentAuthorHatts
    • CommentTimeAug 24th 2008
     
    471 now - I have signed.

    Hx
    • CommentAuthorBahons2
    • CommentTimeAug 25th 2008
     
    Thanks, Hatts

    472 there this morning!
    • CommentAuthorLynni
    • CommentTimeSep 5th 2008
     
    just registered to this website today will be signing as well.
    • CommentAuthorBahons2
    • CommentTimeSep 6th 2008
     
    Thanks Lynni!

    X

    S
    • CommentAuthorrowena
    • CommentTimeSep 14th 2008
     
    Have just signed.

    Thanks for organising to Sara.

    Rowena