Thank you, all you lovely ladies! I am so glad I have got to know alot of you on facebook, your a great bunch of girls! (caroleann, mazaroo, aroma, maximise, karen and any of you I have not mentioned!!!!)
Thank you to the ladies who are not on facebook.
Thank you for the nice messages on facebook too.
Mum has bad swelling under her arm, the marsden are keeping an eye on it. What could happen to her arm with the swelling?
I dont know about the swelling, but my Mum has a very bad case of nero-something, which means because they cut through the nerve tissues, rather than just the nerve endings the arm is affected. EVen if you touch her wrist she screams, but she is not letting that stop her. I have had to pester her non-stop to ensure that she is calling the district nurses and doctors out, so fortunately she has had a proper diagnosis on the reason for the terrible pain.
Hope you get your dental pains sorted before Tuesday!!
I have been to the hospital today regarding my mouth. I am actually under a neurologist because there thought I had something called trigeminal neuralgia. I have had various tests and so far, they don't think it is but they can't rule it out totally. I am on a drug called amytriptaline, but this has stopped working, so today they have put me on something else. The new drug is called Nortriptyline. It is for neuralgia in the mouth. I got an emergency appointment as the pain has got so bad for today. The doctor thinks that all the dental treatment I had last week has aggrivated the problem hence the terrible pain in my mouth. If you google the name trigeminal neuralgia you will see the symptons etc. not nice. I rang the secretary up in tears and I was fitted in as an emergency.
Mum is doing ok thank you, not spoken to her much today as been at the hospital, but will ring her tonight. Your poor mum, sounds painful, but I know how she feels with my neuralgia problems, what drugs have them given her. WIth my pain when I get an attack I literally lie in bed and scream out in pain as it feels like I am gretting electric shocks through my nerve endings in my teeth. I literally flinch, its horrible so I know how she is feeling poor thing.
hi jules so sorry that your having so much troublw with the teeth still ,you are going through it lately arnt you.hopefully the medication will work for you quickly. get your mum to see the doc re the swelling under her arm as it could be a seratoma .i had one after my mastectomy ,its just a bloody fluid filles blister but does need looking at . ,do hope you both continue to improve ,enjoy your holiday ,take care bigs hugs for you both .lynn x
Mum is going back to the Marsden on Wednesday for them to look at the swelling under her arm and decide what to do. We had a lovely afternoon yesterday at Ightam Mote, in Kent. I really love my time with mum even more these days. I have always loved her, but value her so much more after this scare as you never know what is round the corner.
I hope all of my friends from here and Facebook are all doing ok.
I am off to sunny Mexico, tomorrow, so speak to you all soon.
Hi Jules Sorry to hear you now have problems with your teeth, if it's not one thing it's another eh?
Anyway I know of a tooth forum that is supposed to be very good and your questions are answered by a dentist. www.medhelp.org/forums/DentalHealth/wwwboard.html Hope this can be of help and hope you have a pain free holiday. Chrissie xxxxx
Mum starts her radiotheraphy next week and is having a three week course of six weeks. In other words a double dose. The reason they are doing the double dose is that because she had a partial mastectomy and not a full, the margins are very tight and they need to give the area a really good blast. I have to admit being a bit concerned that with such margins, that maybe the should have taken the whole breast off, but it is not what she wanted and I have so hope it was the right results.
And me going through the mill, ha ha well as well as my bowel problems, I had a weird mole that was giving me alot of pain, my sister suggested these moles clinics which give your moles a full mot (as my GP is pants). I decided to go along, and low and behold the one that I thought was giving me gip is just tender because of where it is but not suspicious, BUT they have found another one which is suspicious of Melanoma. The mole was photographed yesterday and sent to a dermatologist consultant (a professor H Peter Soyer). I got the results back today and the mole after being blown up and studied and some markers that indicate melanoma (skin cancer) have shown to be suspicious, so I have been referred today via my gp under the two week cancer appointment guidelines. I was worried last night when they said they were suspicious, as I seem to be having rather a time of it now, but have decided to keep calm as there is no point stressing until I know one way or other. My skin assessment report puts me in the high risk category, and I was told off for not wearing sun factor 50 when abroad by the nurse! I will do in future. Hubby was lovely and came with me today to get the results and said considering the year I am having I am doing really well mentally. I don't know what I would do without him.
Arrh bless, you're really having a time of it at the moment. Will this be your 4th or 5th cancer scare in the last year. That's really bad luck. I suppose if you go abroad alot it's always a risk isn't it. A work colleague had 3 malignant melanomas on her leg, she had them removed and she's fine now.
Jules .... sounds like we are both having a poo time at the mo .... hope you get evrything sorted . You are very lucky to have a supportive husband ,xxxxxxxxTake care Maz
Last year I had a brontcoscophy for coughing up blood, but thats down to my bleeding disorder and weak blood vessels.
My breast lump which came back benign and now this. I don't think going abroad alot has to do with a breast lump or coughing up blood. My husband and I have been to two hot places this year, but I don't sunbathe hardly at all, melanomas are quite common sadly. And yes I am having a time of it but life can be like that at times. As long as its only scares at not the real thing, I will cope!!
Thanks Maz for your support. It has been a crap 18 months but life can be like that at times can't it. Mark my hubby is fantastic, I am very lucky, but he knows that I get anxious and panick. A friend of mine said to me last night that this year has been my annus horribulus lol
Moonshine, not sure what I did to get a comment like that, how nasty??
These forums are for people to talk and get things of there chests.
I am sorry to hear you are having yet another scare with cancer. Melanoma is a dreadful cancer to have so hopefully not that. How are the tests for the bowel cancer - have you heard anything yet. It is a terrible time you are going through, wondering if you have cancer. Lets hope its all just a false alarm.
I had a long chat with the nurse yesterday and she says that although the bowel thing needs looking into, it could just be the holiday thing, and concentrate more on the melonoma thing. I have to admit I looked on the skin cancer forums last night and scared myself witless and didn't sleep last night at all. I think probably the bowel will hopefully just turn out to be ibs and because of my holiday, but yes im worried and making myself over anxious, and no wonder because I think I have had a pretty crap year on the whole what with mum and everything else. My mole is very small so hopefully will just be removed but still its not very nice. Lucky I have some very supportive friends who have been really kind, including some of my facebook friends.
There seems to be a few sarcastic remarks on here, so I tell you what I do have a scanner on my pc, would you like me to send you a copy of my results today from the Mole Clinic. I really really am astounded that women on a cancer site could be so spiteful and nasty. But since the tone in the last few replies sounds like I am making it up I am more than happy to show you the letter from the clinic. So feel free to let me know and I will email you a copy of the results.