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Abbreviations and acronyms used on the forum
As well as medical terms and conditions, forum users often use a lot of abbreviations and acronyms, which can be very confusing for new forum users (and sometimes even experienced ones).
So we're going to try to compile a list (with your help) of the most commonly used abbreviations and post them here.
If you've got suggestions for what should be added, please post them here. What did you find the most confusing abbreviation or acronym when you first started using the forum?
Here they are so far:
(if you've posted others, please be patient, as we might be chatting with our clinical team to make sure we have proper definitions for them)
FAMILY TERMS
YD = Youngest Daughter
ED = Eldest Daughter
MD = Middle Daughter
OH = Other Half (husband, wife, partner)
mil = mother in law
fil = father in law
bil = brother in law
sil = son in law or sister in law
dil = daughter in law
dh = darling husband
ds = darling son
dd = darling daughter
dgc = darling grandchild(ren)
FORUM TERMS
PM = private message
BREAST CANCER TERMS
BC = breast cancer
chemo = chemotherapy
Dx = Diagnosis
MX = Mastectomy
BCN = Breast Care Nurse
Onc = Oncologist
Rads = Radiotherapy
ANC = Axillary Node Clearance. Operation to remove all the lymph glands from under the arm.
Bisphos = Bisphosphonates (bone strengthening drugs). A group of drugs mainly used to manage secondary breast cancer in the bone by slowing down the process of bone breakdown. Also used to prevent and treat osteoporosis.
CMF = a regime of chemotherapy made up of 3 drugs:
- C: Cyclophosphamide
- M: Methotrexate
- F: 5 Fluorouracil (5FU)
DCIS = Ductal Carcinoma In Situ. This is a breast cancer that has stayed inside the ducts and not spread outside. Some doctors call this intraductal or non-invasive.
E-CMF = a regime of chemotherapy made up of 4 drugs:
- E: Epirubicin
- C: Cyclophosphamide
- M: Methotrexate
- F: 5 Fluorouracil (5FU)
GCSF = Granulocyte Colony Stimulating Factor. Injections to boost white blood cells especially neutrophils – a circulating hormonal substance that controls the growth of some of the white blood cells in the blood.
E = Oestrogen (Estrogen is the American spelling)
ER pos/+ Refers to breast cancers that have receptors on the cell surface that latch onto the female hormone oestrogen and help stimulate the cancer to grow.
ER neg/- Refers to breast cancers that do not have receptors on the cell surface that latch onto the female hormone oestrogen and so are not stimulated by oestrogen to grow.
FEC = a regime of chemotherapy made up of 3 drugs:
- F: 5 Fluorouracil (5FU)
- E: Epirubicin
- C: Cyclophosphamide
HER2 = Human epidermal growth factor receptor2. A protein found in small amounts on normal breast cells. It is made by a specific gene called the HER2/neu gene. It is one of the proteins involved in the growth of cells.
HER2 pos/+ = Breast cancers that have a higher than normal level (called over expression) of the HER2 protein.
HER2 neg/- = Breast cancers that do not have a higher than normal level of the HER2 protein.
Hormone Receptor Positive – refers to breast cancers that have receptors on the cell surface that latch onto the female hormones oestrogen or progesterone and help stimulate the cancer to grow.
Hormone Receptor Negative – refers to breast cancers that do not have receptors on the cell surface that latch onto the female hormones oestrogen or progesterone and so are not stimulated by hormones to grow.
IBC = Inflammatory Breast Cancer. A type of breast cancer, so called because the skin of the breast often looks red and swollen (similar to some breast infections).
IDC = Invasive Ductal Carcinoma. A cancer that originates/starts in the breast ducts and has the ability to spread sometimes called No Special Type.
ILC = Invasive Lobular Carcinoma. A cancer that originates/starts in the breast lobes and has the ability to spread
LCIS = Lobular Carcinoma in Situ or Lobular cancer in situ (LCIS). Condition where cells in the lobules of the breast look different and multiply differently from normal cells. Although the word carcinoma is included in the term this is misleading as it is not cancer, so it is often referred to as Lobular Neoplasia. However, having LCIS does mean that you have an increased risk of getting breast cancer in the future, even though most women with LCIS will not get breast cancer.
Neuts = Neutrophils. Type of white blood cell that is very important in fighting infection. Regularly measured if you are having treatment with cancer drugs that lower the number of neutrophils made by your bone marrow (chemotherapy). If count too low, this may mean treatment is deferred until count is within acceptable range.
PR pos/+ Refers to breast cancers that have receptors on the cell surface that latch onto the female hormone progesterone and so are stimulated by progesterone to grow.
PR neg/- Refers to breast cancers that do not have receptors on the cell surface that latch onto the female hormone progesterone and so are not stimulated by progesterone to grow.
PS or p/s - Plastic surgeon
RFA = Radio Frequency Ablation. A treatment that uses radio waves to produce heat to kill cancer cells (ablation means killing completely). Used to treat secondary breast cancer cells in the liver.
SIRT = Selective Internal Radiation Therapy. High dose targeted radiation used to treat secondary breast cancer in the liver.
SNB = Sentinal Node Biopsy. This is a method to detect whether any cancer has spread to the lymph nodes.
Tam = Tamoxifen. Also known as Nolvadex, it is a drug used to treat hormone sensitive breast cancer.
TAX = taxanes. A group of chemotherapy drugs (sometimes referred to as taxoids) that includes Taxol (paclitaxel) and Taxotere (docetaxel).
TN = Triple Negative. Breast cancer cells which do not possess Oestrogen receptors (ER) Progesterone receptors (PR) or HER 2 receptors.
WLE = Wide Local Excision (operation to remove a breast cancer with a small amount of surrounding healthy tissue. Sometimes called breast conserving surgery, or lumpectomy.)


Here's a start, off the top of my head:
Dx = Diagnosis
MX = Mastecomy
BCN = Breast Care Nurse
Onc = Oncologist
WLE = Wide Local Excision (lumpectomy)
ANC = Axillary Node Clearance
OH = Other Half (husband, wife, partner)
DCIS = Ductal Carcinoma in Situ
LCIS = Lobular Carcinoma in Situ
IDC = Invasive Ductal Carcinoma
ILC = Invasive Lobular Carcinoma
A few more
YD - Youngest Daughter
ED - Eldest Daughter
MD - Middle Daughter
Bisphos - Bisphosphonates (bone strnegthening drugs)
Tam - Tamoxifen
chemo - chemotherapy
neuts - neutrophil count - too low means no chemo
GCSF - Granulocyte Colony Stimulating Factor - injections to boost white blood cells esp neuts
Nicky
Also...
SNB = Sentinal Node Biopsy
Rads = Radiotherapy
TN = Triple Negative
and (at the risk of sounding obvious..)
BC = Breast Cancer
Anna xx
Thanks everyone for your ideas so far. Anna - nothing's too obvious to suggest! I think new users can often find all the jargon quite baffling.
You'll see I've started copying your suggestions into the original comment. The ones I haven't copied, I'm just waiting to get some good definitions from our clinical team before I add them to the official list.
Keep them coming!
Leah
It might be a good idea to include the abbreviations associated with chemo like E-CMF FEC Tax etc just so newbies understand that these are chemo drugs eg.E=Epirubicin Tax=Taxotere etc
and IBC Inflammatory Breast Cancer
And a few more that come to mind immediately (partly from a secondary perspective!) ...
mets - metastases
NED - no evidence of disease
RFA - radiofrequency ablation
SIRT - Selective Internal Radiation Therapy
PR and ER +/- - Progesterone Receptor and Oestrogen Receptor
HER2 +/-
Scans possibly as well ie MRI CT and PET etc
K
Thanks so much for this!
Is there something called FEC? if so what is it?
noz
Hi noz,
FEC is one of the commonly used chemos Fluorouracil(5FU), Epirubicin and Cyclophosamide
Dawn
hi noz,FEC is a mix of drugs 3 different ones flurouracil + epirubicin + cyclophosphamide is a chemo treatment I,m on just about to have number 5 of 6 luv sheena
sorry reapeted last post took me soooooo that long to spell drugs dawn answered you all the best sheena x
Really pleased to see BCC putting together list of abbreviations - I really struggled when I first came on this website - had enough to get my head round so this will hopefully help all future users.
Kyra
Thanks that is so helpful, I didn't like to ask what all the abbreviations meant, didn't want everyone to know how ignorant I am especially as everyone seems so clued up on their particular type of BC. I just heard those two dreaded words and everything else went over my head.
Hi everyone
I've added more of your suggestions to the list (see the original post at the top).
If you have any more, please post them here. Don't forget they can be general internet-speak or forum-speak, not just medical terms (I'm thinking of things like 'lol').
So... what were the terms and abbreviations that confused you most when you started using the forums?
Leah
PS I've also added a poll to the list of abbreviations. It's a bit of an experiment, so have a look, cast your vote and let's see what happens. [UPDATE: doesn't seem to work, so I've removed it]
PPS Thanks for all your suggestions so far - I think we're pulling together a great list!
Hi Leah
I just tried to vote (very positively!) but it doesn't work. I get the 'page not found' error.
River
River, you're right, it doesn't work for me either. I wonder why not. I'll just remove it until I can make it work!
Thanks for trying!
Leah
Some more of the family ones -
mil - mother in law
fil - father in law
bil - brother in law
sil - son in law or sister in law
dil - daughter in law
some people use
dh - darling husband
ds - darling son
dd - darling daughter
dgc - darling grandchild(ren)
Seen PS or p/s a few times - plastic surgeon?
Hi CheshireCheese - Yes, I'd say it's usually referring to plastic surgeon, so I've added that to the list. If we're wrong, I'm sure someone will let us know!
Leah
Hi there
I am sure this will be really obvious when you tell me but I have seen a lot of people say "you can PM me" - what does PM mean??
Thanks!
Lucyx
Hi Lucy
PM is "private message". If you want to send somebody a private message you can click on their username. This takes you to their profile, and in the top right hand corner you should see one or two green buttons: "add as contact" and/or "send a message". You might need to add them as a contact before you can send them a private message.
To find your own inbox of private messages that have been sent to you, click on your own username (for example, in the top right of the screen, next to the log out button). In the big pink bar, you should see "my profile" "edit details" "contacts" and "inbox".
Hope that helps
Leah
Hi Leah
Thanks for that - just checked my inbox and actually have a message waiting so glad I asked the question!!
Lucyx
Just BUMPING this one up. See a few on are a little lost on abbreviations.
It's a great thread and certainly helped me in the early days.
May even be some new ones now...
xxx
Thanks Muffett. If anyone has suggestions for abbreviations they've seen on the forum that we haven't covered in our list, please let me know so we can add them.
Hope it helps.
Leah
Can anyone tell me what SLNB means please.
Thank you.
Dear Rosie445,
SLNB stands for sentinel lymph node biopsy. I have attached a link from a previos thread on the subject.
http://www.breastcancercare.org.uk/forum/just-had-wle-and-slnb-t26638.html
I hope this helps
Very best wishes
Janet
BCC Facilitator
How about for those of us single girls with no kids... BF? for Best Friends!!!!
Could you tell me what number/number means e.g. 8/8
Hi there, the numbers quoted as 8/8 means 100%. ie if talking of oestrogen positive for example, this would be it is total 100%
hope that helps.
Hi Jezabel
Thanks for that Wizardpoo, I am posting this 'Understanding your pathology report' which includes some information about this score too
http://www.breastcancercare.org.uk/healthcare-professionals/publications/diagnosed-with-breast-cancer/*/changeTemplate/PublicationDisplay/publicationId/91/
Best wishes
Lucy
Reading threads on Tamoxifen. Could you please tell me what APS and CP stand for.
Many thanks
Tina