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Abbreviations and acronyms used on the forum

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Leah BCC

As well as medical terms and conditions, forum users often use a lot of abbreviations and acronyms, which can be very confusing for new forum users (and sometimes even experienced ones).

So we're going to try to compile a list (with your help) of the most commonly used abbreviations and post them here.

If you've got suggestions for what should be added, please post them here. What did you find the most confusing abbreviation or acronym when you first started using the forum?

Here they are so far:
(if you've posted others, please be patient, as we might be chatting with our clinical team to make sure we have proper definitions for them)

FAMILY TERMS
YD = Youngest Daughter
ED = Eldest Daughter
MD = Middle Daughter
OH = Other Half (husband, wife, partner)
mil = mother in law
fil = father in law
bil = brother in law
sil = son in law or sister in law
dil = daughter in law
dh = darling husband
ds = darling son
dd = darling daughter
dgc = darling grandchild(ren)

FORUM TERMS
PM = private message

BREAST CANCER TERMS
BC = breast cancer
chemo = chemotherapy
Dx = Diagnosis
MX = Mastectomy
BCN = Breast Care Nurse
Onc = Oncologist
Rads = Radiotherapy

ANC = Axillary Node Clearance. Operation to remove all the lymph glands from under the arm.

Bisphos = Bisphosphonates (bone strengthening drugs). A group of drugs mainly used to manage secondary breast cancer in the bone by slowing down the process of bone breakdown. Also used to prevent and treat osteoporosis.

CMF = a regime of chemotherapy made up of 3 drugs:
- C: Cyclophosphamide
- M: Methotrexate
- F: 5 Fluorouracil (5FU)

DCIS = Ductal Carcinoma In Situ. This is a breast cancer that has stayed inside the ducts and not spread outside. Some doctors call this intraductal or non-invasive.

E-CMF = a regime of chemotherapy made up of 4 drugs:
- E: Epirubicin
- C: Cyclophosphamide
- M: Methotrexate
- F: 5 Fluorouracil (5FU)

GCSF = Granulocyte Colony Stimulating Factor. Injections to boost white blood cells especially neutrophils – a circulating hormonal substance that controls the growth of some of the white blood cells in the blood.

E = Oestrogen (Estrogen is the American spelling)

ER pos/+ Refers to breast cancers that have receptors on the cell surface that latch onto the female hormone oestrogen and help stimulate the cancer to grow.

ER neg/- Refers to breast cancers that do not have receptors on the cell surface that latch onto the female hormone oestrogen and so are not stimulated by oestrogen to grow.

FEC = a regime of chemotherapy made up of 3 drugs:
- F: 5 Fluorouracil (5FU)
- E: Epirubicin
- C: Cyclophosphamide

HER2 = Human epidermal growth factor receptor2. A protein found in small amounts on normal breast cells. It is made by a specific gene called the HER2/neu gene. It is one of the proteins involved in the growth of cells.

HER2 pos/+ = Breast cancers that have a higher than normal level (called over expression) of the HER2 protein.

HER2 neg/- = Breast cancers that do not have a higher than normal level of the HER2 protein.

Hormone Receptor Positive – refers to breast cancers that have receptors on the cell surface that latch onto the female hormones oestrogen or progesterone and help stimulate the cancer to grow.

Hormone Receptor Negative – refers to breast cancers that do not have receptors on the cell surface that latch onto the female hormones oestrogen or progesterone and so are not stimulated by hormones to grow.

IBC = Inflammatory Breast Cancer. A type of breast cancer, so called because the skin of the breast often looks red and swollen (similar to some breast infections).

IDC = Invasive Ductal Carcinoma. A cancer that originates/starts in the breast ducts and has the ability to spread sometimes called No Special Type.

ILC = Invasive Lobular Carcinoma. A cancer that originates/starts in the breast lobes and has the ability to spread

LCIS = Lobular Carcinoma in Situ or Lobular cancer in situ (LCIS). Condition where cells in the lobules of the breast look different and multiply differently from normal cells. Although the word carcinoma is included in the term this is misleading as it is not cancer, so it is often referred to as Lobular Neoplasia. However, having LCIS does mean that you have an increased risk of getting breast cancer in the future, even though most women with LCIS will not get breast cancer.

Neuts = Neutrophils. Type of white blood cell that is very important in fighting infection. Regularly measured if you are having treatment with cancer drugs that lower the number of neutrophils made by your bone marrow (chemotherapy). If count too low, this may mean treatment is deferred until count is within acceptable range.

PR pos/+ Refers to breast cancers that have receptors on the cell surface that latch onto the female hormone progesterone and so are stimulated by progesterone to grow.

PR neg/- Refers to breast cancers that do not have receptors on the cell surface that latch onto the female hormone progesterone and so are not stimulated by progesterone to grow.

PS or p/s - Plastic surgeon

RFA = Radio Frequency Ablation. A treatment that uses radio waves to produce heat to kill cancer cells (ablation means killing completely). Used to treat secondary breast cancer cells in the liver.

SIRT = Selective Internal Radiation Therapy. High dose targeted radiation used to treat secondary breast cancer in the liver.

SNB = Sentinal Node Biopsy. This is a method to detect whether any cancer has spread to the lymph nodes.

Tam = Tamoxifen. Also known as Nolvadex, it is a drug used to treat hormone sensitive breast cancer.

TAX = taxanes. A group of chemotherapy drugs (sometimes referred to as taxoids) that includes Taxol (paclitaxel) and Taxotere (docetaxel).

TN = Triple Negative. Breast cancer cells which do not possess Oestrogen receptors (ER) Progesterone receptors (PR) or HER 2 receptors.

WLE = Wide Local Excision (operation to remove a breast cancer with a small amount of surrounding healthy tissue. Sometimes called breast conserving surgery, or lumpectomy.)

jansman
Re: Abbreviations and acronyms used on the forum

Here's a start, off the top of my head:

Dx = Diagnosis
MX = Mastecomy
BCN = Breast Care Nurse
Onc = Oncologist
WLE = Wide Local Excision (lumpectomy)
ANC = Axillary Node Clearance
OH = Other Half (husband, wife, partner)
DCIS = Ductal Carcinoma in Situ
LCIS = Lobular Carcinoma in Situ
IDC = Invasive Ductal Carcinoma
ILC = Invasive Lobular Carcinoma

nicky08
Re: Abbreviations and acronyms used on the forum

A few more
YD - Youngest Daughter
ED - Eldest Daughter
MD - Middle Daughter

Bisphos - Bisphosphonates (bone strnegthening drugs)
Tam - Tamoxifen
chemo - chemotherapy
neuts - neutrophil count - too low means no chemo
GCSF - Granulocyte Colony Stimulating Factor - injections to boost white blood cells esp neuts

Nicky

annalou24
Re: Abbreviations and acronyms used on the forum

Also...
SNB = Sentinal Node Biopsy
Rads = Radiotherapy
TN = Triple Negative

and (at the risk of sounding obvious..)
BC = Breast Cancer

Anna xx

Leah BCC
Re: Abbreviations and acronyms used on the forum

Thanks everyone for your ideas so far. Anna - nothing's too obvious to suggest! I think new users can often find all the jargon quite baffling.

You'll see I've started copying your suggestions into the original comment. The ones I haven't copied, I'm just waiting to get some good definitions from our clinical team before I add them to the official list.

Keep them coming!

Leah

horace
Re: Abbreviations and acronyms used on the forum

It might be a good idea to include the abbreviations associated with chemo like E-CMF FEC Tax etc just so newbies understand that these are chemo drugs eg.E=Epirubicin Tax=Taxotere etc
and IBC Inflammatory Breast Cancer

Kay123
Re: Abbreviations and acronyms used on the forum

And a few more that come to mind immediately (partly from a secondary perspective!) ...

mets - metastases

NED - no evidence of disease

RFA - radiofrequency ablation

SIRT - Selective Internal Radiation Therapy

PR and ER +/- - Progesterone Receptor and Oestrogen Receptor

HER2 +/-

Scans possibly as well ie MRI CT and PET etc

K

noz
Re: Abbreviations and acronyms used on the forum

Thanks so much for this!
Is there something called FEC? if so what is it?
noz

dawnhc
Re: Abbreviations and acronyms used on the forum

Hi noz,

FEC is one of the commonly used chemos Fluorouracil(5FU), Epirubicin and Cyclophosamide

Dawn

sheena
Re: Abbreviations and acronyms used on the forum

hi noz,FEC is a mix of drugs 3 different ones flurouracil + epirubicin + cyclophosphamide is a chemo treatment I,m on just about to have number 5 of 6 luv sheena

sheena
Re: Abbreviations and acronyms used on the forum

sorry reapeted last post took me soooooo that long to spell drugs dawn answered you all the best sheena x

Kyra
Re: Abbreviations and acronyms used on the forum

Really pleased to see BCC putting together list of abbreviations - I really struggled when I first came on this website - had enough to get my head round so this will hopefully help all future users.
Kyra

martinibianca
Re: Abbreviations and acronyms used on the forum

Thanks that is so helpful, I didn't like to ask what all the abbreviations meant, didn't want everyone to know how ignorant I am especially as everyone seems so clued up on their particular type of BC. I just heard those two dreaded words and everything else went over my head.

Leah BCC
Re: Abbreviations and acronyms used on the forum

Hi everyone

I've added more of your suggestions to the list (see the original post at the top).

If you have any more, please post them here. Don't forget they can be general internet-speak or forum-speak, not just medical terms (I'm thinking of things like 'lol').

So... what were the terms and abbreviations that confused you most when you started using the forums?

Leah

PS I've also added a poll to the list of abbreviations. It's a bit of an experiment, so have a look, cast your vote and let's see what happens. [UPDATE: doesn't seem to work, so I've removed it]

PPS Thanks for all your suggestions so far - I think we're pulling together a great list!

river
Re: Abbreviations and acronyms used on the forum

Hi Leah
I just tried to vote (very positively!) but it doesn't work. I get the 'page not found' error.
River

Leah BCC
Re: Abbreviations and acronyms used on the forum

River, you're right, it doesn't work for me either. I wonder why not. I'll just remove it until I can make it work!

Thanks for trying!
Leah

rhapsodyangel
Re: Abbreviations and acronyms used on the forum

Some more of the family ones -

mil - mother in law
fil - father in law
bil - brother in law
sil - son in law or sister in law
dil - daughter in law

some people use

dh - darling husband
ds - darling son
dd - darling daughter
dgc - darling grandchild(ren)

CheshireCheese
Re: Abbreviations and acronyms used on the forum

Seen PS or p/s a few times - plastic surgeon?

Leah BCC
Re: Abbreviations and acronyms used on the forum

Hi CheshireCheese - Yes, I'd say it's usually referring to plastic surgeon, so I've added that to the list. If we're wrong, I'm sure someone will let us know!

Leah

LucyLou123
Re: Abbreviations and acronyms used on the forum

Hi there

I am sure this will be really obvious when you tell me but I have seen a lot of people say "you can PM me" - what does PM mean??

Thanks!

Lucyx

Leah BCC
Re: Abbreviations and acronyms used on the forum

Hi Lucy

PM is "private message". If you want to send somebody a private message you can click on their username. This takes you to their profile, and in the top right hand corner you should see one or two green buttons: "add as contact" and/or "send a message". You might need to add them as a contact before you can send them a private message.

To find your own inbox of private messages that have been sent to you, click on your own username (for example, in the top right of the screen, next to the log out button). In the big pink bar, you should see "my profile" "edit details" "contacts" and "inbox".

Hope that helps

Leah

LucyLou123
Re: Abbreviations and acronyms used on the forum

Hi Leah

Thanks for that - just checked my inbox and actually have a message waiting so glad I asked the question!!

Lucyx

muffett
Re: Abbreviations and acronyms used on the forum

Just BUMPING this one up. See a few on are a little lost on abbreviations.
It's a great thread and certainly helped me in the early days.

May even be some new ones now...

xxx

Leah BCC
Re: Abbreviations and acronyms used on the forum

Thanks Muffett. If anyone has suggestions for abbreviations they've seen on the forum that we haven't covered in our list, please let me know so we can add them.

Hope it helps.

Leah

rosie445
Re: Abbreviations and acronyms used on the forum

Can anyone tell me what SLNB means please.
Thank you.

janet(BCC)
Re: Abbreviations and acronyms used on the forum

Dear Rosie445,

SLNB stands for sentinel lymph node biopsy. I have attached a link from a previos thread on the subject.

http://www.breastcancercare.org.uk/forum/just-had-wle-and-slnb-t26638.html

I hope this helps

Very best wishes

Janet
BCC Facilitator

iswhiz
Re: Abbreviations and acronyms used on the forum

How about for those of us single girls with no kids... BF? for Best Friends!!!!

Jezabel
Re: Abbreviations and acronyms used on the forum

Could you tell me what number/number means e.g. 8/8

wizardpoo
Re: Abbreviations and acronyms used on the forum

Hi there, the numbers quoted as 8/8 means 100%. ie if talking of oestrogen positive for example, this would be it is total 100%
hope that helps.

Lucy BCC
Re: Abbreviations and acronyms used on the forum

Hi Jezabel

Thanks for that Wizardpoo, I am posting this 'Understanding your pathology report' which includes some information about this score too

http://www.breastcancercare.org.uk/healthcare-professionals/publications/diagnosed-with-breast-cancer/*/changeTemplate/PublicationDisplay/publicationId/91/

Best wishes
Lucy

Tiny Tina
Re: Abbreviations and acronyms used on the forum

Reading threads on Tamoxifen. Could you please tell me what APS and CP stand for.

Many thanks
Tina

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