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Anyone looked into PDT??Very interesting link attached
Hi ladies
I looked into this briefly a few months back and my hubby has recently been doing some research on this procedure in China and asia. It sounds like a very exciting and promsing new treatment- take a look at this UK site...
http://www.killingcancer.co.uk/
In china, they are currently offering whole body treatment for widespread mets etc- but here the treatment appears to be more localised and used more for early cancers.
Just wondered if anyone has looked into this therapy or knows anyone who has etc? I imagine it would be mega pricey- we have contacted a clinic in china and they are sending us an info and application pack. Will obviously mention to my onc when I see her next.
Thanks
Tina x
Hi Tina
I'm not on here much these days. I'm in touch with a number of ladies in the USA who are metaplastic triple negative. Some of them are being treated in big research centres like MD Anderson and Sloane Kettering. I'll see if anyone has any experience of this therapy. It sounds interesting, thanks for posting. Lou x
Thanks lou, I've posted on bc.org too, to see if any of the USA ladies with bc have any experience.
Hope ur keeping well
tina x
I'll let you know if I find anything out. Im having a liver scan on Thursday and MRI the following week. Hoping there will be something positive for you and other triple neg ladies in 2012. Take care xx
PDT = Photodynamic Therapy
Link on CRUK's Science Blog:
http://scienceblog.cancerresearchuk.org/2010/12/02/photodynamic-therapy-pdt-is-promising-but-theres-still-work-to-do/
Don't know if this is the same thing but my sister sent me this link a while ago - its in the uk
http://www.doveclinic.com/site/treatments/treatments/l_photodynamic.htm
Mx
http://www.cancer.gov/cancertopics/factsheet/Therapy/photodynamic
One of the ladies I'm in touch with in the States sent this through. There are a few references at the end of the document. It doesn't seem something that is widely known for BC in America, perhaps because it is used mainly for oesophageal and areas close to the surface of the body? Very interesting subject.
Thank you for posting. I think dove offer but I'd not heard of treating metastatic before so very interesting as have in bone and liver, lung. I'd be interested in china clinic. I contacted a mexico clinic early on and were exorbitant prices and length of stay so not really an option for me with 4 kids to leave them for mOnths.
J x
Hi all
the site that hubby has shown me that offers whole body treatments, and so is suitable for mets, is in china. Take a look at the following site. Think the treatment requires an 8 day stay- not sure of price but I'm sure it'll be ut of my reach
http://www.nextgenerationpdt.com
sounds too good 2b true and probably is. Think in a few years time, pdt might be more of a mainstream treatment but still in early stages here.
Tina x
For those who are interested in finding out more about photo-dynamic therapy (PDT), I've provided a link below. I agree that PDT is promising, but currently it is only suitable for periperal and fairly small tumours, as the light source can only penetrate about one third of an inch.
In my opinion (for what it's worth), another therapy called Reolysin holds more promise, although as yet it has only been tested on lung, and head/neck cancers. Reolysin is one of the new generation of biologic drugs, and is actually a particular virus that has been encased in a coating which is genetically modified to attach to specific cancers. When the drug finds a specific cancer, it attaches itself and the virus then enters the tumour and begins breaking up it up, and exposing the stem cell. Radiotherapy, can then reach the stem cell and destroy it.
Link to info about PDT: http://www.cancer.gov/cancertopics/factsheet/Therapy/photodynamic
Yes lemongrove, here in the uk PDT isn't really developed enough yet for use with mets. But the next gen pdt is offering whole body treatments so maybe the uk will follow in time. The killingcancer uk site is doing a (small) breast cancer trial using pdt on primary tumours, pre-mastectomy. It will be interesting to see tge results of that trial and subsequent ones.
Will have a look at the other treatment you mentioned, thanks.