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Hi Car53, I am not in Westhill but am just south of Aberdeen. Was just diagnosed two weeks ago.
Hi Ladies
I'm a newbie on here and I live in Aberdeen. Diagnosed in August with grade 3 ductal and had wle. Did not get clear margins and have been diagnosed with also having lobular. Have since had surgery again and am awaiting results before starting on the long journey.
I look forward to hearing from you.
Hi Georgie, sorry to hear you are also going through this. Good luck with the results.
I am still waiting to hear what my treatment plan is. The results of biopsy from lump under arm is holding things up but spoke to bcn yesterday and hopefully I will hear tomorrow or friday re appointment. Just want the ball to start rolling. I have been told I will get a mx, but when I don't know.
This waiting game is not good.
Hello
Thanks to both of you for your reply.
I was diagnosed in February with lobular- MRI scan- surgery WLE and node removal in March. Radio in May/ June and now on Tamoxifen which has its ups and downs.
During my whole treatment I didn't meet anyone else going through the same experience - I just wish I had joined this site sooner than this week.
I agree the waiting between stages is the worst bit. I kept being told it would be 2-3 weeks but it was more often 4-6 weeks.
Be patient as you will get through the long journey!
Good luck to both of you with your treatment plans. Let me know how you get on.
Hi Anng
I think the breast cancer team meet on a Wednesday at ARI to discuss results and decide on action plans for patients so hopefully you'll receive word soon.
My ball started to roll this afternoon with a phone call from my surgeon's secretary asking me to come to ARI tomorrow. I am now imagining all sorts of unpleasant things but at least I'll know what the rest of the plan is and more importantly when it will start.
Hope you don't have to long to wait.
Hi Car53 - this site is a comfort at times, knowing we are not the only ones going through this. At 39 years old and fit and healthy, I didn't expect this at all. Do you get many side effects with tamoxifen?
Hi Georgie - yeah the bcn said yesterday the team meet today. I was hoping on a call but no. Good luck for tomorrow, let me know how you get on.
Ann
X
Morning Ladies
Hope your both well this dreich day.
Well, that's me finished with the surgeon, clear margins at last whoopee! Next stage is 6 sessions of chemo plus 17 of Herceptin followed by rads further down the line and Tamoxifen for 5 years so a long way to go but will be glad to just get started. Awaiting an appointment with Onc which may take 2-3 weeks.
Hi Car53 - Are you on Tam for 5 years? I have been browsing this site since being diagnosed but hadn't plucked up the courage to register until your post so thanks for that.
Hi Anng - hope your appointment is on its way. Yes this site is a comfort and I personally didn't realise just how indiscrimate bc can be - it has no respect for either age, fitness or sex.
Have a good weekend.
x
Hi Georgie5
Good to hear that your treatment plan is a bit clearer now.
I am on Tamoxifen for 5 years although I think there is a possibility that they change it to something else in the last two years. My next appointment with oncologist is in January which seems a long way away but when I count up the weeks is only 9 weeks away.
Your emotions get such an upheaval from the whole bc business so remember to be kind to yourself. I still get ups and downs with more good days than bad now so it is going in the right direction.
Hi Anng
Hope you've had a good day. The waiting game is a hard one to play.
Take care
Hello Ladies,
Yay for clear margins
good to hear you now know your plan of action Georgie! You should of gave the surgeon a push in my direction lol.
Although I did get appt through today, 21st of this month so not too long to wait. At least it will make my plan clearer to me after this date.
What a horrible day here again, it has rained every day this week.
Ann
X
Hi
Sorry haven't been on here since Friday busy trying to get up to date with things before chemo starts. Anng - great that your appointment has at last come through for next Monday - your treatment plan will be revealed then. Car53 - you have a bit longer to wait for your appointment but it will be here before you know it what with Xmas and everything.
I still at times can't believe I have bc but I surely will when I start chemo and loose my hair. My hair is very fine and thin anyway so not much hope of saving it even with a cold cap. Hope to choose a wig before it all starts. I'm supposed to contact the bcn when my appointment date comes through to discuss. My usual hairdresser has said she will cut and highlight it if I want so thats good. I'll also follow the other ladies on this site who are undergoing chemo and maybe pick up some good tips.
Kind regards
G
Its funny how the whole BC experience feels very surreal at times.
Good luck with the hair. You sound as though you are getting mentally prepared which will help. This website has lots of tips from ladies undergoing chemo so hope you find some moral support and practical tips to get you through it.
My hair which is fine and thin too, was ok after radiotherapy apart from getting very curly and growing fast - very odd! My hairdresser wouldn't colour my hair until 6 months have gone by so I am looking forward to getting some highlights in time for Christmas.
Take care
D
Hi ladies, how are you both?
I too think this is all surreal. Still have bad moments but I guess that is normal. Three weeks today since I was diagnosed. You just don't know what's round the corner.
How did you find radiotherapy Car53? Those who I have spoke to said they were very fatigued during it?
Can't wait until Monday so I know a bit more of my plan of action
CLAN's new premises at Westburn Road are having an open day and Christmas fare this Saturday.
Hello
Thanks for the info on the Clan Christmas Fair.
I have been going to CLAN for a while now for Shiatsu massage which has been wonderful. My next appointment is in the new building. It is great having this time just to be good to yourself and it has kept me going. Like joining this site I took too long to make the Clan connection thinking I was so strong and independent I could do this on my own- BIG mistake!
I bottled it all up too which didn't help.
Take all the support you can get as it is a rollercoaster ride!
Radiotherapy was OK. The parking was a nightmare but the staff were lovely. If you slap on the aqueous cream they advise it helps stop skin from breaking out. I got very tired towards the end and for a good while afterwards. Just picking up my energy levels in the past month.
I just ignored housework but did manage to cut my grass throughout the summer even though it took several days.
Only a few days to wait now until Monday!
Take care
Hi Ladies
Just to say I was mid message to you when the phone rang and I leant on something and it just disappeared so don't know if the message was submitted or deleted. Who said women were good at multi tasking?l
Anyway it was just to say that my appointment with the Onc is on Monday 21st - same day as yours anng - Ooooooh! I'll phone the bcn tomorrow for more info about what it will entail.
Thanks for the info about CLAN car53. I knew they held various therapy and feel good sessions but I haven't contacted them yet. I suppose I still don't see myself as a cancer patient or don't want to but once I get started on the chemo regime that will all change I expect.
Hope your both well.
Kind regards
G
Evening ladies
Car53 I was thinking of going for a treatment session at CLAN, I may try the Shiatsu massage. I visited the new building, its lovely.
Parking at the hospital is always a nightmare aint it.
Georgie, where do you go to see your onc? Is it the same clinic? I am there in the afternoon. Only 4 sleeps lol - I just want to know!
My bcn phoned today just to see how I am. She is ever so nice.
What has everyone got planned for this weekend? I hope the weather is good
Hi Ladies
My appointment is 10.00am at Clinic D (I went to Clinic E when seeing the surgeon) and the BCN told me that the chemo nurse will answer any queries I may have regarding treatment. She was very nice and said she would send out the paperwork for my wig and that things usually move pretty quickly after the initial appointment with the Onc. Oh god its beginning to be very real now and I'm apprehensive about Monday. Keep reminding myself that the sooner I get started the sooner I'm finished. The BCN said that most ladies tolerate the chemo quite well but judging by the posts on here I know that it can go either way.
Nothing planned for the weekend. Monday - ARI, Tues - meeting a friend for lunch and Wed - a filling at the dentist - I lead such an exciting life - not!
Hope you both have a good weekend - 3 sleeps until appointment day.
Kind Regards
Hello
The Shiatsu therapist at Clan is Kay who is lovely!
I'm glad you are having support from your BC Nurse. I have only once heard from mine during all my 6 months of treatment. Its maybe different with Chemo.
I hope your dentist goes Ok - I have had problems since surgery with a front crown which keeps falling out. The dentist thinks it got twisted when I was under anaesthetic. After the fifth time my dentist has decided to remake it so until then I am stuck together with polygrip! As if we didn't have enough to cope with.
Have a good weekend- it will soon be Monday and at least the weather has been fairly good this week -for November.
Take care
One sleep
Have any of you ladies had the flu jab? I was thinking I should maybe get it, will ask tomorrow.
Had a quiet weekend. Was in town seeing the lights go on earlier. It was crowded.
Hope you both had a nice weekend.
Ann
X
Hi
I got my flu jab a few weeks ago from my GP. He said I should have it before starting chemo.
Over 3 months since being diagnosed and haven't been contacted by a BCN. The only reason I contacted them was to get the form for my wig. Hope the chemo nurses are more communicative.
Saw the Onc today and she confirmed that I would have 6 FEC followed by 18 Herceptin and that it would likely start next week. Back in the waiting room again for the appointment to get started.
How did you get on today anng at your appointment?
Regards
G
Hi,
Glad things are moving for you Georgie, hope you don't have too long a wait for your appt.
I got my date for mx, 15th Dec so not too long. Three weeks.
Seeing gp today re flu jab.
Hope all is well today with you both.
Ann
Hello
I'm glad you both have moved a step more along the journey.
I've not had flu jab but I've been thinking it might be worth it.
I enjoyed the Shiatsu on Monday and the Clan building is lovely. There is a waiting area with huge windows overlooking the park and it was lovely to see all the autumn colours and dogs/ children running about in the leaves.
They do aromatherapy, reflexology and aqua detox so treat yourselves. I keep being told 'Be Kind to Yourself' which is good advice to help us through the trauma of waiting between stages of diagnosis and treatment. It amazes me they don't charge anything- you can give donations though. For ages I thought about going but thought -that's just for sick people- takes ages to sink in - I don't think you ever fully accept it however that's maybe what keeps us going in fighting it!
Take care
Hi
Glad you've got your date for your mx anng. Just be good to yourself over the next couple of weeks. I treated myself to new pjs,slippers and dressing gown - I really know how to live eh!
I'm planning to phone CLAN to ask about therapies but not sure if I should go before, during or after chemo. I thought maybe preparing the body for the onslaught might not be a bad idea but have still to decide what to do and will need to get a move on.
I have to go for a MUGA scan next week (Thurs 1st Dec)to find out if my heart is pumping okay before they start the poison - so it will be back to waiting again for a date for the chemo to start. I have to go to the Department of Nuclear Medicine so will be getting yet another dose of radiation.
Hope this finds you both well.
G
Car53 glad you enjoyed your shiatsu appt. I was at the last coffee morning in the new building and know where you are talking about. It is so relaxing looking out at the park. I am sure it is the first wednesday of each month that the coffee mornings are held. They do wonderful work and everyone is so nice. A superb place.
Georgie, hope all goes well with your scan next Thursday! Its good to treat yourself - pj's, slippers and dressing gown sounds good to me
Got my letter and info pack re op today.
Hope you both have a great weekend!
Ann
X
Hello
Hope you are both enjoying the weekend and relaxing a bit before next hospital trip. It must be much harder for people who live a lot further from the hospital.
I too bought the new dressing gown slippers and pjs before going into hospital- anything to keep morale up is worth it!
Yesterday I went to the Enchanted Castle at Crathes which was all lit up with different effects. It was beautiful but very busy and not a lot of room for people to pass on the paths. I still had tickets from last year when it was snowed off - last night was 15 degrees- warmer than most of our summer days.
I'm still not good in places where I might get bumped into.
Hope everything goes well for you both next week.
Hi
I'm the same when I'm out - frightened that someone will accidently bump into me and hurt my tender booby. Even when the cat jumps up I hold out my hand protectively.
Haven't done much this weekend. Got my chemo timetable on Saturday and have felt quite anxious about it all. Kicks off with my first FEC on 9 Dec and the second on 30 Dec - Happy New Year eh! but at least I should be okay for Xmas. If all goes according to plan I will have my last FEC on 23 Mar 2012 and start Herceptin on 27 April.
Hope this finds you both well.
G
Hello ladies,
I saw on the news re the Enchanted Castle at Crathes. It looked really good.
Aw Georgie I really hope all goes well with your chemo.
When I received my letter re mx it made it all so real. I am quite anxious too and will be glad when it is all over.
I have a treatment booked at CLAN for Thursday. Reflexology. Looking forward to it, thought I would pamper myself
Had a nice weekend. Off out now to walk the dog. Scarf and gloves will be on, it is freezing!
Hope you are both well.
Ann
Hello
Its been a wild windy day today. I spoke to my son in Canada and they had their first snow today.
Anng: hope you enjoy the reflexology tomorrow. I did a lot of self foot massage from a book I downloaded. It showed different pressure points you can do yourself and it did help to relax things a bit.
I used to treat my feet every day as I slapped on the aqueous cream for the radiotherapy- any left over went on my feet and it has kept them nice and soft! Hope you get some tips from the experts at Clan.
Georgie: hope the visit to the nuclear medicine dep goes well. I had a radioactive blue dye injection there just before my surgery which showed up nodes and made me feel like a smurf! The bright turquoise blue goes right through you and has only faded properly in last month. Let me know how you get on.
Hi Ladies
Yes I was smurfed as well before surgery and still have some blue patches on my boob. Fortunately there was no node involvement.
Today I was injected with radioactive stuff before they did the scan to find out if my heart was pumping okay. I've been told to keep away from small children and pregnant women for 24 hours. Oh the things we have to go through!
Got my wig on Tuesday and its actually better than I thought it would be. Its highlighted with dark bits underneath. My old dad said it was an improvement so that doesn't say much for my real hair does it!
Only thing I must do now is book me into CLAN for something relaxing before next Friday.
Hope your both doing fine and bearing up.
Regards
G
Hello ladies
I also was injected with radioactive stuff at nuclear medicine prior to my bone scan. Was warned to stay away from pregnant women and small children also.
Car53 I didn't get my treatment at CLAN. Had to cancel due to my appt for pre op assessment which came through for same day. I now have my treatment for this Tuesday instead. Felt awful cancelling it but was told it happens a lot due to hosp appts.
Are you both all ready for Christmas? My shopping is just about done, just a couple of things to get.
All the best for Friday Georgie, let us know how you get on.
Snow supposed to be here Monday!
Hope you are both having a nice weekend. Quiet night in for me, rock and roll
Ann
X
Hi Ladies - pardon me butting in. I'm not Westhill but ellon, but do go thru Westhill to get to Costco Danish pastries - does that count?!
Anyone at Clinic D next January? Just realised my appt is Friday 13 to see if the tiny nodule they found in my lung when they diagnosed my bones mets in September has done anything untoward - CT scan on previous Friday.
OH joy!!
Nina