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for anyone affected by breast cancer
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Hi UkRose
I can't help with this query - just hope you have not been upset by what you've read and have decided to stop writing.....
Fran
x
Dear Rose
If you send an email to
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Best wishes
Lucy
Dont leave the forum, there are such a lot of lovely women going through similar treatment to you, and they can give you so much help and support. Theres going to be so many questions you have not just about your treatement but about side effects, and very soon you will know so much about it and be able to offer help and advice to other newbies.
Friends and relations can be very supportive but they dont realy know what its like.
Even if you dont feel like talking to people at the moment you could just stop posting rather close it all together, just in case you change your mind later
oldandlumpy
I feel much better now, had a good cry, and there have been many supporting comments which made me feel better.
Rose xXx
Rose
This is a great site - everyone who posts on here understands what you are going through. We may not all be undergoing the same treatment but we do all have BC. Stay with us Rose and hopefully you will soon feel better.
mmm, I hsve not cried once yet, ok my treatment schedule is a walk in the park compared to some, but its still BC. It cannot be natural to keep it all in. I suspect soon after rads have ended I will have a complete meltdown.
oldandlumpy
I have the bone scan next thats more upsets. But i am going to get my head round it!
Rose x
I cry sometimes. I've become quite a baby.
)
Tomorrow is another day
Crying is a good way to let off steam and it makes you feel better afterwards.
Not for me. Now i'm a snotty nosed crab.
Hi Rose
I had a bone scan last week and like you was very worried. The worry was so unnecessary after the injection the scan was just lying still on the bed. There was a nurse in the room with me all the time, so I could talk if I wanted to. Sending you lots of HUGS xx
Please don't leave the forum people on here are so lovely and helpful. Have you got your date for starting chemo? I am starting this Friday 5th so am posting under "starting chemo in August" Please join in.
Poodlepatch
Oh! did you go on your own, its the thought of the unknowning. Iam alright i am full of it. things round and round. When i wanted to weight i could not. funny.
I had a bone scan on my own... it's a breeze - truly.... Injection before hand, then you have to go away for a few hours.. return, then lie on a bed. The machine is over you, but no-where near you. They put some music from my own iPod on (cause it takes a little time) it was uninvasive and the staff were lovely.... you don't have to drop in here every day (and there are, if I'm honest, some threads I don't read cause I'm not in the same place), but it would be good to have your company on this journey... and ours on yours.... God bless Jane
GIJaneH
Thank you for support. i will be strong, it helps me a great deal by coming on here the ladies are just wonderful::::)X helping you along the path.
Warm wishes Rose X
Hi there,
Just to chip in with the others - I've found this forum a godsend, both for info and for connecting with those who ' 'get it' cos they've 'got it'.
Where the bone scan is concerned - it's fine. In fact so fine I fell asleep! This was the last of the scans I had (MRI and ct + heart). You're going thru' the worst part, which is the waiting. Once you know what you need to deal with and how it's going to be tackled you'll feel much better - promise.
Take care x
Hello rose
So glad you are still posting. No I didn't go on my own OH came with me. He couldn't come in the room with me (he went of and had a coffee) but the nurse is with you all the time and you don't feel anything. Its is just a nice relaxing rest. I do know how you feel, you keep thinking about it and it all builds up in your mind.
Think positive and as someone else said the waiting time is the worst part. When you have had this scan you will wonder what you were so worried about.
Sending you lost of love and hugs and let us know when you have had the scan.xx
Hallo Rose,
Good luck with your bone scan, deffo worth taking your own music with you, the worst bit of mine was the cheesy music!
I am another TN, an ancient one at 66, and "celebrating" the first anni of my surgery over the last weekend. It sounds as if your onc has lined up some good chemo for you, I had FEC but not T as so old (sort of LOL) and would agree with the other ladies that it is not great but it is doable, especially with support from the forums here. The dark woods lot even make it sound fun, even when it isn't. I wish that thread had been going when I did chemo.
And it is better when all the results are in and you know what you are facing compared to all this unknown gremlins in the shadows stuff.
Have some hugs
Lavender xxx
Thank you all:::::
XxX the forum is brillant my nurse told me about this site and glad she did. Its the gremlins you aright.
Warm wishes to everyone X
Rose.
And to you, Rose, hope things are OK
thinking of you xxx
mon
hi lavender lassie and everyone
sorry if I appear a bit dim but was is TN? also you said you had FEC but not the T because of your age. I will be 70 end august but I am down for 3 FEC and 3T. any explanations.
TN is triple negative - ie oestrogen, progesterone and HER negative.
Hi Poodle Patch,
As Finty says TN is Triple Negative. I had FEC but not T, had to discuss getting chemo at all quite a bit with my onc, as I have other medical problems. I think he was expecting to see a little old lady in a wheelchair the first time we met. I had no nodes affected but a little lymphovascular invasion, and not suitable for rads, TN means hormonal treatments and herceptin not helpful, so felt I really wanted chemo. Husband thought I was mad when they said I could have chemo, I grinnned from ear to ear.
Hi - I had 6 FEC and then 6 TAX as I've secondaries (++) - doctors will decide on the best regime for each of us. Mine decided to do the two separately to see how I got on with each and to give me what he thought was the max dose of 6 of each. Some doctors sometimes want to do chemo in combination eg capcitabine+vinorelbine but again mine like to do them separately so it seems to me there are different decisions that they make depending on our type of cancer and their experience/knowledge of the drugs.