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liver mets I have just found out today that i have livers mets. I am just about to finish a course of capcitebine for a small node on my neck. The node on my neck has now disappeared but the cancer has now shown up in my liver.I feel that this is the end of the line for me so if`any of you have any good news stories can you share them with me and give me some hope.
Liver mets Hi there Megane
NO NO NO DONT GIVE UP
I know how you feel as I had BC and Liver mets straight away - but that was in June 2002 - So I am heading for my 5th year with liver mets and they are still under control
So YES there is hope
It will take a while for you to get your mind around it all but yes yes yes there is hope
I had Arimidex and Zoladex to start with then had radio therapy on my overies ( depends on your age I am 52) so now on Arimidex only
The mets are still there but smaller.
Yes I thought it was the end of the line for me too but I am still here to kick up a fuss and intend to do so for a long time yet
Feel free to mail me as we are all here to help each other
Keep possitive luv jANE
hi Megane All i can say is "dont give up" and I know how you feel, I know how annoying it is when people say, "you have to keep fighting etc etc" I feel like saying blah blah blah what would you know anyway. but we have to keep fighting this thing Megane. i dont know anything about liver mets as mine is in my brain, have had another scan today and hopefully no where else?? I just keep praying, thats all I guess i can do? Take care Megane and remember, where there is life there is hope!
Regards Suzy
Hi Megane, having liver mets is not the end of the road, I am 2 years since since dx with multiple lesions in liver up to 10cms in size and am now healthier than ever.
To get to this point has been a journey and a half and the dark days at dx are awful but it gets better. Mentally you learn to live with it and that is as hard as the physical challenge.
If you want to win this battle the most important thing is to collect information. Take your time, when you have got over the initial shock, and that will take a few weeks, start searching. There are sites on net you can talk to others with same dx. Then, and this is important, ask your onc or GP to refer you to liver specialist as they can offer treatments other than chemo which your onc cannot offer.
When you have got over the shock and need to know more I am more than happy to chat as I have tried all sorts to get to this point.
liver mets thank you all very much for your support. It helps to know that there are other people living with this dx. I have managed quite well since my first dx in 1999 but after a few bouts of chemo you begin to wonder if you can summon the strength up again for another fight..
I dont have any support at home as my sister lives in Canada and my dad (85) lives with me but i have never told him anything about my dx.
So at times its a bit of a struggle but having found this site i hope not to feel so alone.
Hi Megane I am glad that you are finding the BCC site helpful but BCC offer a peer support (someone in your area you can talk to) and also you should have access to a Breast Care Nurse at the hospital who might be able to put you in contact with a local BC support group.
I know it might seem a bit premature but have you contacted your local hospice? I went to see them when I was first dx with liver mets and was really poorly - I had massage and Reiki, it was wonderful. I am now on the 'user group' committee (although I am so well now I don't actually 'use' them at all) but they are a great bunch of people and, as it is where I intend to end up, I might as well support them before I need them to support me! Think about it, it is not all doom and gloom at the hospice.
All the best
Blondie
Peer Support Hi Megane
I have given here details of Breast Cancer Care's peer support service which Blondie refers to in her post.
The purpose of the service is to put you in touch with someone who has personal experience of breast cancer or benign breast conditions. They have been trained to listen and offer emotional support and further information.
We do our best to match you with someone who has similar experiences and issues as yourself and who therefore understands what is most important to you. I have given the link to this service below:
http://www.breastcancercare.org.uk/content.php?page_id=4438
I do hope you find this service useful.
Kind regards
Online Host
Breast Cancer Care
Don't give up Hi Megane
Just to reiterate what the others have said, liver mets is not the end of the road. I had multiple liver mets in Nov 2004 and had Docetaxol. My most recent CT scan in Oct 2006 showed no sign of liver mets so there is every reason to keep on.
I've had a few other hiccups along the way ( see profile) and am currently on Capecitabine for bone mets...........watch this space. As long as onc is happy to give me these treatments I'm happy to try them.
Chin up, the diagnosis does get easier to bear, not easier to accept sometimes but you find you're own way of coping. I just go from one appointment to the next.
Thinking of you
Love Kitkat