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Hi Loupylou, just bumped a couple of thread up for you, regarding Metaplastic bc xxx hope they are helpful to you xxx
Thanks a lot Sandra, much appreciated xx
hi yes i am also metaplastic but only recently found out so sorry cant help you out with any info as dont know much about it myself. Im 29, having right mastectomy tomorow, already had 2 operations but they decided i would need to have mastectomy in the end. havent started any treatment yet and not sure what i will be having yet! feel free to message me. geanie x
Hi Geanie, I've found quite a bit of info from America including a Facebook site set up by a lady with metaplastic. I'm trying not to be fazed by it as I already knew I was TNC and i've had two WLE, dose dense chemo AC-T which seems to be recommended and 25 rads. Just more stuff for us to deal with I suppose. Good luck with your treatment, let me know how you get on. Lou xx
Lol Loupylou
Have just found this thread. Have just private messaged you to see if you knew about the facebook site.
Geanie - I was diagnsed with MBC last November. There's not really alot of info out there but the fb site is a really good start.
Both of you feel free to Pm me.
Good luck with your mx tomorrow
Maria x
Hi all,
I have just found this forum, I was diagnosed with Metaplastic spindle cell carcinoma on Monday (13th) having a right mastectomy next week and follow on chemo and radiotherapy. Very scared as not much known about this type of cancer, but trying to stay positive.
Nice to know I am not alone though,
Nic
x
Hi Nic
I've only just seen your post as I don't come on this site very much anymore as there aren't many ladies with metaplastic. I am a member of the MBC Facebook group set up by a very inspirational lady - Bena Roberts and it is very supportive and informative. There's around 200 ladies with MBC around the world on there. Hope your surgery and treatment went well. PM me if want any info
Lou x
Bump..i have it too!
Dulcie xx