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Recurrence/triple Negative
Fri, 09/09/2011 - 11:56
#1
I have had a recurrence on the same breast . 1 1/2 years ago had a WLE grade 3 followed by chemo and Rad. All clear 13 months later although a lot of scarring and reaction to Rad. went back4 months later with some probs. Ended up with Msx . Results first ti e were er + , I was on arimidex. Now triple negative, this was also grade 3 and 5 cm. Where the he'll did it come from. Seeing surgeon again . This is 1 1/2 post op . I am 55
Any comments
nellienac
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hi nelliemac unfortunately this can happen and i have no ideahow, i am sorry you have to go through this , i was dx with trip neg so know what i am dealing with but you will get lots of support from trip neg ladies on here sorry i cant be much helpbut sending hugs rachel xxx
Thanks , will know more next week
I had an grade 1 hormone positive cancer then a grade 3 TNBC in the other side and now got a recurrence of that one, although it's still classed as TN it's slightly different to the primary as it's grade 2 and has a tad more oestrogen and her2 than last one. Maybe your last one was just under the borderline between negative and positive and this time it's just over.
I do think some cancers are quite smart though and change a wee bit as the treatment reduces the likelihood of them coming back in one form they come back in another.
I think they will try to decide if your is a recurrence or a new primary. A recurrence grows back from the cancer that was there before but a new primary is a completely new cancer altogether. A new primary is less common but tends to occur more in younger with a string family history. Eg gene mutation carriers have about a 50% risk of a second primary but non gene carriers it's around 5%.
Good luck with your treatment. I'm having surgery on Thursday for my recurrence and there is an area from the biopsy which looks previously treated from when I had Chemo and rads 2 yrs ago. So I'm hoping that is a good sign in that it does look like it's responded to treatment so hopefully they can Zapp it for good this time. And yours too!
Love and hugs Lulu xx