Community
- Community search
- People
- Live chat
- Forums
- Latest posts
- Your posts
- Active topics
- Using the discussion forums
- Breast awareness
- Worried
- Diagnosis
- Treatment & side effects
- Living with breast cancer
- Living with secondary breast cancer
- Talk to others in a similar situation
- Good news, hope & inspiration
- Your Views
- In Memory
- Chit Chat
- Archive
- Archive - Current issues/hot topics
- Archive - DCIS/LCIS
- Archive - Family history and genetics
- Archive - Forum feedback
- Archive - Have I got breast cancer?
- Archive - Living with breast cancer
- Archive - Local recurrence
- Archive - Men with breast cancer
- Archive - Newly diagnosed
- Archive - Reconstructive surgery
- Archive - Secondary breast cancer
- Archive - Undergoing treatment
- Archive - Younger women
- Archive Chit chat and fun
- Archive Christmas and New Year
- Archive - After treatment has finished
- Archive - Benign breast conditions
- Archive - Complementary therapies
- Archive - Family, partners and friends
We are aware that there are bugs with our online community, and we still working through the bugs list and retrieving missing content. Thank you for your patience.
Regular scanss/test
Who's online
There are currently 6 users and 0 guests online.


Regular scanss/test Wondered what your views were on regularl tests/scans etc. The protocol at my hospital seems to be not to undertake any tests/scans etc. until patient experiences symptoms. I don\'t think it is just a \'cost\' thing, as my consultant explained the reasons were as follows:
1) They don\'t want to put women through too many unnecessary tests
2) it might give a false sense of security as problems could occurr between tests etc.
Personally, I would much prefer to have yearly blood tests/CA markers/liver function tests and an chest X-ray, just to eliviate any fears. I will try and get my GP to arrange these and when I have my next follow up in Dec. hopefully all the results will be back and I have a better idea of \'where I am at\'.
Any views would be appreciated.
Thanks a lot.
Birgit
Regular scans/tests Hi Birgit,
I\'m with you on this one. Just finishing rads after having had mastectomy and chemo, and it is slowly dawning on me that the policy of the hospital I attend does not carry out any tests at follow ups.
I\'m finding it all pretty scary at the moment, and much as I would dread the results, think, like you, that I would like to know where I\'m at. Also, would like to know that as far as they can be sure I have no recurrence at the moment, and then think I\'d have a \'clean start\' if you know what I mean, cos at the moment every little ache or pain scares the hell out of me!!
Jean
Hi I am 4 years post-diagnosis and am now on annual check-ups and 2 yearly mammograms. My oncologist made it clear at the outset that no follow-up tests would be done unless I developed symptoms, and added that if bc patients develop secondaries, it doesn\'t make any difference when they\'re discovered. I find this very odd - surely if a tumour is discovered early rather than late, it can be treated more effectively? A blood test for liver function isn\'t very invasive, after all!
Spare me the tests I don\'t want regular testing and scanning (other than annual mammogram and ultrasound on other breast which I do have.)
I accept the practice which says that slightly earlier diagnosis of secondaries through scanning rather than when symptoms occur is unlikely to make any difference to length of survival. I know there is some evidence that earlier diagnosi sof bone mets could be an advantage but this finding is still tenuous.
I find tests and scans enormously anxiety making and get as reassured as I can by 3/6 month prods and pokes and questioning. This may indeed be denial but I\'m under no illusion that probably my cancer will return and I\'d rather know later than sooner given that mets are essentially terminal.
Jane
It\'s all very testing! Hi all.
My hospital also have a no tests policy. At first this terrified me, as in the early days my thinking was different. I didn\'t understand the implications of getting this illness, so thought that every test in the world should be done. However as you get deeper into this illness and its treatments it\'s clear, especially if you have a good oncologist, that if you do get a reacurrence then unfortunately the treatment becomes a \'management\' situation. My onc was very honest and I trust what he said, it did make sense to me but was hard to hear. He advised that my main concern should be reacurrence, as this would be more likely than a new cancer starting in the other side. Although my prognosis is good, of course there is still that tiny chance etc. He explained that although there some tests being researched, they are not in main stream because they can be unreliable and this can cause anxiety. He also said that you could have a test and it could show nothing at the time and then six weeks later something could occur. Over all he said that whether we are tested or present with symptons then the outcome is the same, i.e they can\'t cure us! It\'s all a bit of a mine field, with different trusts advising slightly different courses, but I know that when I\'m not having treatment I feel better about the whole thing. When I was inbetween treatments I almost felt like my old self so, for me, not being tested is the right thing as once my rads are over I hope that maybe I can start to move on a bit.
I know every one is different, but it\'s interesting to see all our different experiences and sometimes reassuring [well I find it reassuring] to know that your hospital or trust are not short changing you.
Hope you are all well where ever you are on this journey,
Scarlet. xx
regular scans I agree, at my hospital they don\'t do scans, the reason I was given was that a secondary has to be a certain size to show up on a scan and that I would be having symptoms by the time it had got to a size that was visible. So my onchologist will rely on me reporting symptoms rather than scans. Plus as said before a secondary is not curable but a management issue so I\'d rather know later rather than sooner.
Kay
I was diagnosed with my breast cancer and bone mets at the same time and I have monthly CA15-3 markers taken (bloods) rather than regular scans as my markers are very reliable, they don\'t work for everyone.
Mets can be micoscopic so I\'m not sure regular scans would be worthwhile but if anyone suspects they might have spread I would urge them to investigate it sooner rather than later.
As Kay has said secondaries are not curable but I\'m in remission and have been since the Summer 2005, (was diagnosed in 2003).
I know women who have been living with their mets for many years.
Prompt treatment, (especially in the case of bone mets) can really help stabilise and in some cases put breast cancer into remission for very long spells.
Belinda.
Reassured Thank you girls for all your replies. I am glad to see that other hospitals have the same policy and what has been said about mets obviously makes. sense. However, as I already have had a recurrence and lymph node involvement at level 3, I am concerned that something else is going on and that I might not notice it. I feel generally not very well, probably due to the Arimidex, with a lot of joint pains etc. and I do worry that I may develop bone mets. Personally, I would rather know sooner than later, as I am the sort of person that wants to know exactly \'whats what\', even if it is bad news, and then I can get on with it. Not knowing whether there is anything makes me actually more anxious.
Anyway, hope my GP will arrange these tests for me (he did previously) and then I have a clearer picture in mind when seeing the oncologist in Dec.
Birgit
Report back Just a quick report back. Had all the bloodtests incl. Cancer Marker CA15-3 (which some of you had recommended on this site), and everything absolutely in normal range - hurray!!!
Very nice GP discussed all results with me in detail - so feel much re-assured. GP understands my feelings and is more than willing to repeat these tests, even if hospital is not willing to do so.
Seeing onc. in early Dec., but obviously not worried now.