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starting chemo in January 2012
Sun, 11/12/2011 - 19:02
#1
Hi everyone,
possibly a bit early to be posting this but thought I would start a thread for those of us starting chemo in January. I had WLE in November and will be having some further surgery on 21st December as the margins weren't clear. I'm meeting with the oncologist in early Jan and will be starting chemo and Herceptin sometime later in January. It would be great to link up with people in a smilar position
xxx
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I am starting chemo on the 4th January. 2012. I had a WLE and margins were clear. Tumour size 3 cms. Lobular type of Breast Cancer. The Lymph nodes were OK. I had the ONCOTYPE DX Test and the score on the test was 25(16% chance of recurrence) so I am having chemo, radiotherapy and hormone treatment. The consultant says I will have Hair Loss. Tomorrow I have an echocardiograph. I am postmenopausal. I don't relish the idea of menopausal type problems,such as hot flushes, coming back.
Hi
I will also be starting chemo in January. I did think it was going to be December but I had to have further surgery.
I had WLE and SNB in novermber with clear margins but 2 out of 5 nodes involved so had lymph node clearence last week and get my results Friday.
I haven't been formally refered to ONC (or I don't think I have) so I expect I will get more information Friday.
take care love Anne x
Hi
I found out today that I will be starting chemo on 5 January. I was diagnosed in September had WLE and SNB in October, unfortunatley the margins weren't clear and a lymph node was affected so I had more of the breast tissue removed and all my lymph nodes removed on 22 November. Results came back clear so the next step is 6 x FEC chemo, followed by radiotherapy and then tamoxifen (I think I am spelling this all correctly!) I have been reading the December chemo thread and everyone is so supportive of each other. I think this site is amazing, a real support for everyone involved.
Anne I hope you get good results on Friday.
Thejourney I too have been prepared for hair loss, I haven't gone through the menopause yet so am dreading those side effects.
Happyhunter good luck for your surgery on 21 December, I hope it goes as well as my second op did.
Hugs to you all
Gillian xxxx
Hi Ladies,
Just popping in from the Sept thread to wish you all good luck!
I was diagnosed in July and had a WLE & SNB late July, Grade 3, no nodes but not clear margins do had another WLE in early August. Due to my age (43) it was felt I should have chemo which I started late September. My last chemo should be (fingers crossed) 9th Jan (Yippee!)
I just wanted to say its do-able - not always pleasant but you can get through it! My top tips are suck ice lollies whilst on FEC to prevent the chemo messing your mouth about. If in doubt about any side effects - speak to your chemo team & Onc - they can change your tablets to suit you! Finally, accept any help you are offered!
Take care & good luck on your journey!
Axx
My chemo drugs are, Doxorubicin(Adriamycin, cyclophosphamide(Cytoxan),paclitaxel(Taxol). I have an appointment on Monday afternoon with a company which supplies wigs and head coverings for chemo patients. I want to get this sorted out before my hair starts to fall out. Thanks AnnieK68 for your good wishes to us January chemo people and to those who have commented regarding their Journey.
Thanks for your good luck wishes Gillian!
Here's hoping we all have a wonderful Christmas! Love and hugs to you all
Claire xxxxxxxxx
Hello everyone,
I have been diagnosed in early October, had a lumpectomy October 13th, biopsy of the lymphnodes were clear, thank God, but had to have a second surgery to remove more breast tissue as the margin was too thin. Have my oncologist appointment on the 4th of January - looks like I am going to have the full Monty, chemo, radiation and now that I read up on it, Herceptin, as the tumour was / is HER2 positive. Cr*pping myself over chemo, it's the not knowing what to expect thing. Feeling a little calmer now reading through the December chemo posts but still..
I live in Copenhagen; everyone was super nice and thankfully language is not an issue, everyone speaks English.
I've been stuffing my face like there is no tomorrow, thinking I must build myself up before chemo (managed it, I've put on 4 kgs and I wasn't underweight before either) but maybe it is time to stop. I thought the silver lining with chemo is going to be weight loss but I see this might not be the case.
Good luck to all of us - I am so glad I found this tread. I was ready to explode!
Julianna xxx
Hi everyone
I did post on Decembers as well.
I had good news Friday and none of my nodes were affected, only the 2 original ones from SNB. I was so happy on a weired sort of way and couldn't stop smilling all the way home.
I have to wait now for an appointment with ONC. I will have to have Herceptin as HER+ and have been reading some of the other ladies experiences on the site which are a bit scary. I know I have to take one step at a time and get through chemo before worrying about Herceptin but getting I'm bored at home with the miserable weather and way too much time on my hands. And the waiting, well what can I say, it is driving me crazy.
Going to concentrate on Christmas and enjoy the holidays.
Anne xx
Hi Everyone
Hope you are all as well as can be expected and looking forward to Christmas.
Anne - great news about your results. I know exactly how you felt getting the news that no more lymph nodes were affected as my results were the same. I only had the 1 original affected one from the SNB. I hope you get your appointment with the ONC soon and then you will know when you are starting chemo. It is so much easier to plan your life when you know what direction you are going in.
Happyhunter - wishing you loads of luck for your next op on 21 December. It is awful sitting around waiting for it but if it is anything like my op you will do great.
Thejourney - it looks like you are first of the January girls to start chemo, I will be close on your heels on 5 Jan.
Julianna - welcome to our thread, it is a shame that any of us are here but hopefully we will all keep each other supported over our journies. What is the weather like in Copenhagen?
And me - well I am going to enjoy Christmas and New Year to the full this year building up my strength for starting chemo in January!
Hugs to you all
Gillian xxx
Hello ladies, please can I join this thread.
I start chemo on Friday 13th January - FEC x 6 then hormone therapy. I was diagnosed at the end of September and had mx with DIEP reconstruction on 10th November. 2/17 lymph node involvement.
I have found this forum incredibly helpful and reassuring.
I hope we can all have as good a Christmas as possible and go into next year with a view to beating this
Clare x
Hello all,
i've been given the date of 10th January 2012 to start my chemo. i'll be having TAC minus the C. 6 cycles, 3 weeks apart for 18 weeks. once that is all out of the way i will start 3 weeks of Rads.
not really looking forward to it but it has to be done. i'll do anything they tell me if it helps keep this horrible disease at bay.
i'm just so greatful i get to enjoy my bday (19th Dec, yesterday), xmas, my Mum's bday (30th Dec) and new year before i start my treatment
hope you are all well.
Lynzi xx
Hi everyone,
I was diagnosed with BC in oct had WLE on 7th Nov,lymph nodes & margins clear but because my lump[although small]was grade 3 i've been told i need chemo which starts on Jan 4th,6xTAC followed by 3 wks rads then hormone therapy.Today i went to a wig clinic to get myself sorted in plenty of time before my hair falls out which i'm not really looking forward to.I don't post often but find the forums a wealth of information from all you wonderful ladies that are at different stages of your journey.
Take care love Tracey.xx
Hello.
Just jumping in to wish you all the best and to say that chemo is doable. I finished chemo (3XFEC and 3X Tax in August and have since had double mx and rads, which finished two weeks ago) It seems endless when you are at the beginning but you will get there and life will return to normal eventually. Look after yourself and accept any help that's offered.
Love to all ladies starting chemo in 2012.
Rach x
Hi Everyone
Welcome Clare, Lynzi and Tracey to the January chemo thread. Not a place any of us want to be but hopefully we will be able to share experiences and offer support to each other. Thank you Rach for your positive comments. It helps so much to hear that others have successfully completed chemo and that it is doable. I am trying to concentrate on Xmas and the New Year and spending time getting together with my friends and family. I am very nervous about starting chemo but know that it is something that I will have to get through. I suppose it is a case of taking each day as it comes one step at a time and by the summertime we should be finished with both chemo and radiotherapy. Well I had better go I am going out for xmas dinner with my work colleagues. Take care everyone.
Love to everyone.
Gillian xx
Hi
Had a phone call from ONC and have appointment Thursday so should have a plan. Had butterflies for an hour after the call (not with excitement either).
Also been and had my hair cut even shorter; I have gone from below shoulder to short bob and now it is cropped like Frankie from The Saturdays. Haven't had it this short for years but I'm hoping the hair loss will be less traumatic (have taken advice from the December girls).
Anne xx
I purchased a wig last Monday so that this will be one less thing to worry about when I start the chemo on the 4th Jan. I am planning to get by hair cut in early Jan before it starts to fall out in clumps.
My hair is cut short in layers at the moment and I have not got my colour done for several weeks so quite a bit of grey showing!
I am having 8 sessions of chemo which seems quite a lot, followed by the radiotherapy. Luckily I live very close to the hospital where I am being treated. Enjoy Christmas everyone and we will let January take care of itself.
Hi Lovely Ladies.
Just popped in from Dec thread to wish you all well on your journey. You will find a wealth of support, knowledge and advice on here - it really is a fab place, full of lovely ladies. Although none of us want to be here, you will draw a lot of strength from this elite club!
I am on 6 x FEC, due my second on Friday, and have been pretty lucky with se's. I know you will all be apprehensive, but as other ladies have said it is doable honest! I think the fear of the unknown is scarier than the actual reality.
Hi Anne, Glad you got your appointment through, will feel better once you have a game plan. I also had a "Frankie" cut, which I absolutely loved and wish I had it done ages ago! In fact I Loved it so much I got a similar wig!
Hope you all have a fab Christmas and a healthy New Year
xxx
I am at home at the moment (home being Budapest, Hungary) stuffing my face and drinking plenty of alcoholic beverages with head firmly in sand. Chemo? Cancer? I will face the dark, dark woods in January (by the way, if you have not read that tread yet, do - it is inspiring), until then party time!
Julianna
hi ladies i'm new on here but felt less isolated reading your posts. I was diagnosed with bc on 3 nov have had two lumpectomies and all lymph nodes removed under right arm pit. Went for pre chemo talk today i start 12 jan on fec-t 3 wks apart for 18 wks then mastectomy and recon. My world seems to have been turned upside down yet am grateful i can enjoy xmas with hubby and kids aswell as my daughter's 1st birthday before chemo. I'm very scared had floods of tears today, opting for cold cap too praying my hair wont fall out everything is just so overwhelming.
Hi everyone.
I had WLE on 17th Nov and diagnosed with grade 2 non invasive ER pos no lymph nodes involved.
I start chemo on 9th Jan. 6x FEC at 3 weekly intervals. then rads and tamoxifen.
Bit apprehensive and mostly concerned about how I can limit the chance of the cancer coming back as don't want to go through all this or worse again.
Here's to all of us on the Jan thread, thanks for starting it. Happy Christmas everyone. At least we can all enjoy Christmas with our loved ones without feeling ill.
Love to you all, Jacqui xxxxxxxx
Hello ladies,
just jumping in to say good luck for jan. You will all get through it. I had 4xFec, 4 tax and finished in oct. This was folowed by 15 rads. i like you thought I would not get through and I did. Still got a way to go but there is light at the end of the tunnel. look after yourselves and try to be positive. make sure you stay on here as there are amazing ladies with fantastic support and advice.
Hugs to you all
Maj xx
Hi again everyone
Anne - good luck with your ONC appontment today.
Thejourney - it is good that you live near to the hospital if you are having 8 chemo sessions. Are these sessions still 3 weeks apart?
Julianna - I know exactly what you mean when you say 'head firmly in the sand' that describes how I am at the moement.
Jacqui - welcome to the thread, you are having the same treatment plan as me, lets hope we all have small se's.
Thanks Collette67 and Maj for your positive comments they really do help.
I hope you all have a lovely christmas and new year.
Gillian xx
Hi everyone
Had my ONC appointment this afternoon and I start FEC-T on 19 january, so 3 cycles of FEC then 3 cycles of Taxotere. I have to have UUS abdomen next week as she thought she could feel 'something' when she examined me; possabiliy a fibroid.
I have also been asked if I want to take part in a trial which will be given along side Herceptin and is thought to be an extra bolster for HER+ cancers. It is caled Pertuzumab and I have a loads of information to wade through. It will mean that I am monitored more closely so feel a little tempted. Will start a thread to see if anyone else has been offered similar.
Have a merry Christmas Anne xx
good evening all,
hadnt noticed this thread and started another earlier oops
Had my MX and full node clearance on the left side 13 days ago..meeting with surgeon yesterday who has advised 4 x FEC and 4 x Tax from January then 15 radiotherapy to follow. Not sure of exact date until next wednesday when I meet my Oncologist but am assuming it will be January
good luck to all and can I ask is anyone going to try the cold cap?
julie x x
Hi everyone
Just popped in to wish you all a Merry Christmas & a healthy/happy New Year.I expect your all busy today,I have a very excited 6yr old daughter & a 3yr old son who will be 4 tomorrow what a day that is going to be.
Hello Julie-I did considder trying the cold cap because i didn't like the thought of losing my hair,the chemo nurse told me that it did not work for everyone & added extra time before & after treatment so decided not to go for it & got myself a wig instead.
Tracey xx
Hi Julie i am going to give the cold cap ago, hopefully I'll be able to take it. The nurse said the 1st 15 mins determine if you can take it. Anything is worth a go tho! I'm starting chemo 10 Jan I'm quite anxious but trying to focus on xmas new year and my daughter's 1st birthday all happening this month! I've gone for the constant one that doesn't need to be changed don't no why but just thought it'd be best one for me as they change the other one 3 times. Good luck to you x
Starting AC on the 3rd January - was supposed to be 13th December, however, my wound got infected and my implant had to be removed. My stitches come out at end of this week and having a portacath put in.
Is there anyone out there on AC - how are the side effects?
Wendy xx
Hi everyone, diagnosed on 26th oct 2011, had WLE on 22nd november and full node clearance. 6/14 were clear and 4cm tumour. All went well then 6 days later developed infection, temp of 39.5 and back in hospital this made me very poorly and set me back. Seromas had decided to drain naturally through a tiny outlet near wound opening. This has been going on for 3 weeks, but gradually lessing. met oncologist last week, wants me to have tac and i start on 30th december,(he is admitting me for the day as he doesnt want to hang about, is this a reason for me to be concerned about) but thought best to join the january 2012 thread for support really. I am so scared, the worst thing is my only daughters wedding in may, and haveing no hair etc getting me down. Lts face it a spot would be an inconvenience on your child's wedding day really. I am trying to be positive but then i keep thinking of the forthcoming months of treatment. also have to have raiotherapy, and herceptin. This has all been a rollercoaster and in my 25th year of marriage, crap timing and birthday tomorrow. I am hoping that by joing tthis thread i can find support from others going through the same treatments.
hi everyone
Happy birthday Minty27.
It is my birthday tomorrow and my 25th wedding anniversery in the summer so I also riding the rollercoaster!
OH had a meltdown on Christmas night which wasn't helpfull (probably due to huge amounts of alcohol, he drank all my share as well as alcohol just doesn't hold the same appeal any more). He started full scale sobs and the whole guilt/blame thing started (why did you have to get this, why did it have to be the most agrressive type, why,why why) had to leave the room, told him I didn't need this especially at christmas. Needless to say he was tad sheepish in the morning but realised we hadn't actually disscuss anything properly. Time seemed to be filled with hospital appointments. We did talk things though and he just feels out of control and hates seeing me in pain/discomfort. Told him the surgery was probably the easy bit because you have an inkling what to expect and the chemo is an unknown enterty as each person reacts differently and I'm c***ing myself.
I have been following December girls as I did think I was going to one of them but had to have more surgery and they all seem to be doing really well with all their side effects well controlled (think OH thought I'd be spending most of the time with my head in a bowl!)
I have definatly picked up more information from here than from any where else; a leaflet cannot give you the support that first hand experience can.
Roll on to the next appointment, test and scan.
Anne xx
Hi all,
hope you all had the best Christmas possible
Jules - i am going to give the cold cap a try although i'm not sure how long i'll last.
Mary - looks like we start the day day, 10th Jan xxx