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Hi there ummmmmmm it's just a suggestion but how about:
Lobular Breast Cancer
Insitu and Invasive.
Big thank you for all you girls do - You have all been very helpful over the last few months - you all seem to 'read between the lines' of what we write and reply so speedily.
Thanks for your suggestion and your kind words. I'll see if I can get our clinical team to give us a good definition, then add it to the glossary.
best wishes
Leah
I've added them now (copied below for your reference).
Invasive Lobular Carcinoma (ILC)
A cancer that originates/starts in the breast lobes and has the ability to spread
Lobular Carcinoma in Situ or Lobular cancer in situ (LCIS)
Condition where cells in the lobules of the breast look different and multiply differently from normal cells. Although the word carcinoma is included in the term this is misleading as it is not cancer, so it is often referred to as Lobular Neoplasia. However, having LCIS does mean that you have an increased risk of getting breast cancer in the future, even though most women with LCIS will not get breast cancer.
I have seen references to cording. What does it mean?
Hi Lent Lily
You will find information about cording in our 'Your operation and recovery' publication which can you can read via this link, it's on page 17:
http://www.breastcancercare.org.uk/upload/pdf/your_op_and_recovery_07_web_0.pdf
Best wishes
Lucy
How about tubular, never heard of this one until last week
Thanks for the suggestions Lent Lily & Tally. I'll see if we can get them added to the glossary.
Leah
"Cording" & "tubular breast cancer" have now been added to the glossary.
Thanks for the suggestions - keep them coming!
Leah
residuali in my pathology report it mentioned a residual foci of DCIS
Will see what we can do, Lent Lily.
Could you also add information about phyllodes tumours (cystosarcoma phyllodes)?
Thanks goanna, we'll look into that one too.
Leah
We've added 'phyllodes tumour'to the glossary here: http://www.breastcancercare.org.uk/forum/viewtopic.php?f=162&t=24991&p=388303#p388303
Thank you Leah for adding Phyllodes to the glossary.
May I ask what triple negative cancer is?
Some women post about it and I have no idea and do not wish to offend by my ignorance!
Thanks Welsh girl
Hi Welsh girl - I believe it is when the bc is not hormone receptive (ER- and PR-) and is also HER2-negative, so that hormone therapy would not be effective and neither would Herceptin.
This is what is says in the Glossary:-
TN = Triple Negative. Breast cancer cells which do not possess Oestrogen receptors (ER) Progesterone receptors (PR) or HER 2 receptors.
Ann x
Thanks Ann. I was obviously looking in the wrong place in the Glossary section!
Really helpful to know.
Welsh girl
RFA [M1yu posted I can't find the thread now but in the last 2 days and said she is having one soon] from what she said it's an operative procedure to do with your liver??
RFA is Radio Frequency Ablation.
WBR is often mentioned on Secondaries, Whole Brain Radiation.
RFA = Radio Frequency Ablation. A treatment that uses radio waves to produce heat to kill cancer cells (ablation means killing completely). Used to treat secondary breast cancer cells in the liver.
(I've taken this from the list of abbreviations and acronyms used on the forum that we've pulled together http://www.breastcancercare.org.uk/forum/abbreviations-and-acronyms-used-on-the-forum-t24993s0.html)
Happy to take suggestions for abbreviations that are used on the forum to add to this list too.
Hi, when l was asking questions about Mastectomy, msmolly suggested we have a section for Mastectomies and Living Breast Free, is that possible?
Sandra
Hi Sandra - that has been suggested to me and it's on my list of potential new sections to consider. It seems quite a sensible suggestion, so should be OK.
Leah
I find some of the acronyms (abbreviations) from your contributors somewhat confusing. They clearly know what they are talking about. However, I don't.
I have figured out that SE refers to Side Effects and assume "mets" refers to metastatis. I also understand FEC due to my own research into chemo (which luckily I did not need) After that, I am in the dark, eg Dx Mx or am I being stupid
Hi Linky,
No you are by no means being stupid, it just takes a while to get all the abbreviations, when l first posted it took me a while to understand the abbreviations, often looked back and tried to work them out, dx - diagnosed, mx - mastectomy, l am sure there are still a lot l do not know, but if you posted, someone would quickly come along and explain
Sandra
Hi Could you add mastoplexy please. My surgeon mentioned it on his letter and am not sure what this means, not mastectomy though? Thanks Jackie
Hi Linky - it's not just you who is confused by abbreviations! When people use the forum a lot, they do tend to slip into using abbreviations rather than typing things out the whole time but it does take some getting used to.
To try to help, we have got a list of abbreviations (http://www.breastcancercare.org.uk/forum/abbreviations-and-acronyms-used-on-the-forum-t24993.html). If you spot any more that aren't on the list, just let me know and I'll add them.
Leah
Hi Libby
I'll ask the clinical team about mastoplexy and see if we can add it to the glossary. Thanks for suggesting it.
Leah
Would it be possible to have something about the different types of lines for chemo, l have heard of hickman, picc, and portacath, would love to read more about these, not sure if there are others
Sandra
Libby - we've added "mastopexy" to the glossary (An operation to raise and reshape the breast often referred to as a ‘breast lift’).
Sandra - I think information about different types of lines for chemotherapy might be a bit detailed for the glossary, which is really just a list of terms and definitions.
There is an explanation of the different types in this leaflet: http://www.breastcancercare.org.uk/upload/pdf/chemotherapy_07_web_0.pdf
Leah