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Family History Telephone Support Groups (TSG)

Family History Telephone Support Groups (TSG) : are designed for people who are confirmed to be BRCA Gene carriers with and without breast cancer. Our next Family History TSG group scheduled to run is for BRCA gene carriers without breast cancer s...

Posted by Jo BCC on Tue Sep 07, 2010 7:22 pm with 0 comments

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Family History Telephone Support Groups (TSG) : are designed for people who are confirmed to be BRCA Gene carriers with and without breast cancer. Our next Family History TSG group scheduled to run is for BRCA gene carriers without breast cancer s...

Jo BCC, Tue Sep 07, 2010 7:22 pm
Support Forum - 24 April 2010 Central London

Breast Cancer in Families Support forum 24 April 2010 Central London This is a one-day event bringing together women with hereditary breast cancer, breast cancer gene carriers and others whose family histor...

Posted by UK Services Team BCC on Mon Feb 01, 2010 4:55 pm with 21 comments

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Hi Jan. It was great to meet you on Saturday. Hopefully see you again sometime. Elaine xxx

veggiebab, Wed Apr 28, 2010 12:48 am
Called for a new genetics trial

Hi, I did post on this section a while ago and had some good advice so hoping you ladies are able to help again. At the time I was wondering whether to find out if I had one of the known BC mutations as I have 3 grown up daughters. In the end the girls...

Posted by Lily200 on Sun Aug 22, 2010 10:49 pm with 17 comments

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I don't know, Lily, but the study nurse was really helpful when I needed to contact her. You can also take a bit of time before filling in the form. Eliza xx

Eliza, Tue Sep 07, 2010 9:18 pm
Double Mastectomy & Reconstruction

I have posted this for new user Ruth Jo, Facilitator Hi all you 'fabulous' ladies out there. Im 38, have an 8 month old son and live in Cornwall, uk. My sister was 30 when three years ago she found a lump and was given 6 months to live. With her bei...

Posted by Jo BCC on Tue Aug 17, 2010 9:59 pm with 8 comments

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hi ruth i have had breast cancer twice at 38 and 40 and have the BRCA 2 gene.... im going for preventative surgery in a few months.... but very worried about it all. i also work in breast cancer genetics so i see women in your situation at work regula...

Lulu34, Wed Sep 01, 2010 10:09 pm
Why her and not me

My sister has saved my life 3 times, and I don't know how to thank her. We were never very close but got on fine as we lived 600 miles apart. We spent much of our childhood and adulthood being jealous of each other. I was so jealous when she gave birt...

Posted by marial on Fri Aug 20, 2010 5:26 pm with 22 comments

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More hugs coming your way )))) Jackie

libby 2010, Mon Aug 23, 2010 7:39 pm
Anyone referred to ICR from Manchester St Mary's ??

Hi, Mum and I had genetic testing done at the Preston clinic of St Marys in May last year (no results yet.....) but yesterday I got a blood testing pack from ICR for their genetic familial bc research. Rang them and it's because M'cr have passed mum's...

Posted by lizcat on Thu Jul 29, 2010 6:26 pm with 3 comments

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Thanks for that Lulu. Although the woman at ICR never mentioned that research project, it would sound like a distinct possibility as there is a consent form for me to sign and send back when the blood sample is returned. I'm off on hols for a week t...

lizcat, Sun Aug 01, 2010 10:23 pm
BRCA genetic test

Hi, I was wondering if anyone could shed any light on the BRCA genetic test. I'm 27 and have been dx with ER pos, PR pos and HER neg breast cancer. I've asked my breast care nurse several times to have the BRCA test but she hasn't organised it. I re...

Posted by rosie83 on Fri Jul 23, 2010 3:59 pm with 6 comments

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KEEP PUSHING!!! It's not normal to get breast cancer in your 20s. I was diagnosed last year aged 29 and had to fight for my test, my oncologist's registrar basically told me I was being hysterical, refused me the test and wrote a letter to my surgeon s...

francescap29, Fri Jul 30, 2010 1:48 pm
Waiting....

I have been recommended by my genetic consultant to use this site whilst I am waiting for my BRCA1 results. In late 2007/early 2008 my aunt aged 47 was diagnosed with terminal breast cancer again. As her mother (my grandmother) had died at 50 she deci...

Posted by EmmaM1 on Fri Jul 23, 2010 9:06 pm with 6 comments

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Hi Emma, I really hope you get the result you are hoping for. Fingers crossed for you. I am 30, and had BC last year and underwent full treatment, and have just been rediagnosed a month ago. I had the test in April as my mum had also had BC and the res...

francescap29, Fri Jul 30, 2010 1:36 pm
BRCA 1 fault just diagnosed

I've just been informed that I have a BRCA 1 mutation. I'm gutted and in shock. I was diagnosed with bc almost a year ago and had a bilateral mastectomy. Because my mum died of bc at 41 and grandmother of ovarian cancer at 67, I was offered genetic tes...

Posted by caro111 on Tue May 04, 2010 10:15 am with 16 comments

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hi Sandra even without a gene test your daughters would be able to get screened early because of you extensive family history.... in england this screening is mammograms annually from age 40.... and there may be research programmes that would let them...

Lulu34, Sun Jul 25, 2010 11:48 pm
nolans on the one show

nolans on the one show about genetic testing for anybody interested.... its on now. Lxx

Posted by Lulu34 on Tue Jul 20, 2010 7:02 pm with 4 comments

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Thanks for that Lulu. God its so complicated isn't it? Mind what you said does make sense, so I can understand how it can take a long time for results to come through. Thanks again Krissy x

katinthemiddle, Tue Jul 20, 2010 7:48 pm
loose women

I'm sat here watching loose woman, they are talking about breast cancer. Coleen Nolan has just said that her sister Bernie had had the gene test, and is not carrying either of the faulty braca genes. How on earth has she had her results back so quick? ...

Posted by sharon69gog on Wed Jul 14, 2010 12:52 pm with 13 comments

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hi ladies hope you's dont mind me butting in here, i havent been on here for ages but wanted to say i got tester for brca2 and got positive result within 4 weeks. just wish everyone only had to wait that amount of time as it's so difficult..x

lainey32, Sun Jul 18, 2010 11:15 pm
Can I ask for overy removel?

My Mum died of Overian Cancer and I have a fear that I'll develop it too. As Ive had a hysterectomy light years ago I'll not get any symptoms until it will be well on it's way. So my plan is to ask the ONC if he'll whip them out but am I 'over reactin...

Posted by Lazydaisy1 on Sat Apr 03, 2010 4:16 pm with 19 comments

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Again, diiferent onc advise different things. I was 34 at dx with no family history, small tumour, no vasc inv, no lymphs involved, grade 3, 100% er and pr+, and was told straight away i would need tamoxifen and zoladex, or i could have ovaries remove...

lolly73, Sun Jul 18, 2010 7:22 pm
Phew. Clear results

Hi All I went for genetic testing (at The Heath in Cardiff) back in March and got a letter with my results today - no evidence of BRCA1 or 2! Yipee!! Mum and Gran both had BC, but no other females to know whether there could be a stronger link. I had ...

Posted by Flora29 on Fri Jul 16, 2010 8:59 pm with 5 comments

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Brilliant news :) x

Pippi, Sun Jul 18, 2010 6:41 am
Private mammograms

Hi all I had primary BC at 47 and my Mum has just died of secondary Bc aged 78. My dad and grandad both died of lung cancer and my auntie of bowel cancer. I have a sister of 46, I encouraged her to go to her GP, they were quite dismissive of her at fi...

Posted by LadyChatterbox on Sat Jul 03, 2010 8:05 am with 3 comments

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I have private mammograms every year at our local Nuffield hospital.Mammo costs £90 and consultation with my surgeon about the same again.An ultrasound was £240.These figures are from Nov 2009.

horace, Sat Jul 03, 2010 8:03 pm
The test?

My mum has recently been diagnosed with breast cancer and we have a history of it in the family... i am 17 and have been advised by my aunt to have a test done - she however lives in Australia and doesn't know the procedures or anything. so basically...

Posted by cherryblossom17 on Tue Jun 29, 2010 8:30 pm with 4 comments

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Thank you ever so much for your help :) xxxx

cherryblossom17, Tue Jun 29, 2010 10:37 pm
Do I want to know?

Hi I was Dx with IBC in August 08 and had a bi lateral MX. I had my ovaries removed 10 years ago. There is a strong family history of BC i.e. Mum, aunt x 2,and cousin, all of whom have since died. My sister is obviously worried for herself, as I am ...

Posted by AndieT on Thu Jun 24, 2010 7:13 pm with 4 comments

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Thank you so much for you answers.I will give careful thought to the new information you have given me Andie

AndieT, Thu Jun 24, 2010 9:39 pm
Awaiting genetic testing results??

Hi, I had genetic testing done in June 2009 and am still awaiting results. Is this normal? Is anyone else waiting on results? What time scale has anyone else experienced? Kim x

Posted by kimmy2108 on Thu Feb 18, 2010 11:16 pm with 36 comments

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Hi Liz I think it was somewhere in Manchester that my test was sent, (it was done in Chester) I was told that the longer you wait the better because it means that they haven't found anything yet! After a year I was sent a letter to say that a had te...

Nicky65, Sun Jun 13, 2010 11:55 am
Hysterctomy vs oophoretomy

I am a BRCA2 carrier ( had breast cancer at 41)and will be having preventative surgery later in the year. I have been advised by one gynae to have a full hysterectomy because of the increase in uterine cancer but another one advised me to have just an...

Posted by CT59 on Mon Jun 07, 2010 11:59 am with 6 comments

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Thanks for your help everyone. My risk of ovarian cancer is actually about 35% because both my cousin of 34 and my grandmother died from it. Having said that I think I will probably opt for the oophorectomy because as you say a hysterectomy is a majo...

CT59, Tue Jun 08, 2010 2:39 pm
What to expect from the testing process?

Hi, I am due to have a genetic testing counselling session in a couple of weeks time and was wondering :- 1. What questions are they likely to ask me so I can be prepared. Is it best to try and work out a family tree to see if there is any history (...

Posted by F1Fan on Thu Apr 01, 2010 7:23 pm with 8 comments

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Hi, back again after my results came through last week, about 11 weeks after the blood test. Am pleased not to be BrCa positive! However am still faced with the fact that its genetic (polygenic) and what to do next. Am pretty certain I will have risk r...

nickynackynoo, Tue Jun 01, 2010 6:15 pm
My girlfriend is BRCA1 pos,and due for surgery soon

Hello all,my girlfriend(33) was diagnosed BRCA 1 positive awhile ago now and she due to have a double mastectomy and reconstructive surgery with implants (Lattimus dorsi?)in about 3 weeks time.Although she hasn't had bc herself there has been a very hi...

Posted by steview on Mon May 10, 2010 2:33 pm with 7 comments

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I absolutely concur: being held and stroked, non-sexual touch is so important, or as jansman said "just love her, simply love her" ... I don't think I could've put it better. My situation wasn't anything like as serious as many on this site but knowin...

Debs4, Mon May 10, 2010 10:08 pm
brca2 newbie

well I got my test results back on tusday and I do have the mutated brca2 gene :( my mum is just getting over bc@58, my nan had it @38 and died of ovarian @64 I say my mum is getting over it but all her surgery has gone wrong and she has a open wound i...

Posted by hstar on Thu Mar 25, 2010 9:10 am with 7 comments

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hi carebear it does take a wee bit time to get it all straight in your head.... hopefully you will get referred to a psychologist to help you think it all through and discuss your concerns so you can make a decision thats right for you.... dont feel pr...

Lulu34, Fri Apr 30, 2010 1:34 am
Breast cancer following treatment for Hodkins Disease

I was treated for Hodkins Disease in 1884 with radiation. In about 2002/3 I was advised by the hospital that as a result of the treatment i was an increased risk of breast cancer and began regular screening. Sure enough i had a bi lateral mastectomy i...

Posted by TILLYB on Mon Apr 19, 2010 5:43 pm with 0 comments

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I was treated for Hodkins Disease in 1884 with radiation. In about 2002/3 I was advised by the hospital that as a result of the treatment i was an increased risk of breast cancer and began regular screening. Sure enough i had a bi lateral mastectomy i...

TILLYB, Mon Apr 19, 2010 5:43 pm
Just discovered I carry the BCR2 gene

Hi.. New to this site today.. Just got genetic results on Monday... I'm 36 and have 2 young daughters. I have alot of thinking, discussing and decisions to make in the near future. My mum has had breast cancer twice (primary tumours on each breast 2...

Posted by carebear on Sat Mar 06, 2010 12:19 pm with 9 comments

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Hi Lulu34... Thank you for your post.... Wow you've certainly been through the mill and so young to have gone through BC twice. I'm sure you feel you have had enough intervention just now and the thought of anymore is just unthinkable! Its the d...

carebear, Sat Apr 17, 2010 9:49 pm
Thank goodness for familial mammogram

Hi all, just wanted to say, Thank goodness for my regular familial mammogramm, i am quite new here, but am 45, just had WLE and stage 3 node clearance, dont get my results until the 21st of this month. If it hadn't been for my familial mammogram i wou...

Posted by nanny4 on Sun Apr 11, 2010 3:21 pm with 10 comments

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I am glad your niece will feel reassured, I hope all goes well for you also, Keep in touch, take care Sandrae x

nanny4, Sat Apr 17, 2010 3:42 pm
twin sister died of BC

hy all, I lost my twin sister to bc in Sep 09, i have since had to have bc reducing surgery on left breast that went wrong, so now have to have nipple re-construction, then later in the year i have got to have right breast done, the thing is, i have be...

Posted by mardijane on Tue Mar 23, 2010 2:41 pm with 7 comments

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Hi Mardijane Just wanted to say that I'm an identical twin and while I have had bc since 2003, my sister - so far at least - thankfully doesn't have it. Obviously our family history is different from yours, but I wanted to add to the comments you've ...

alisonm, Tue Mar 30, 2010 12:19 pm

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