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Living with secondary breast cancer as a younger woman

Wednesday 3 November and Wednesday 8 December 2010, Bristol Hello We are piloting a new course, designed to bring together younger women who are living with a diagnosis of secondary breast cancer; to gain information and support and share experience...

Posted by UK Services Team BCC on Wed Aug 25, 2010 11:25 am with 0 comments

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Wednesday 3 November and Wednesday 8 December 2010, Bristol Hello We are piloting a new course, designed to bring together younger women who are living with a diagnosis of secondary breast cancer; to gain information and support and share experience...

UK Services Team BCC, Wed Aug 25, 2010 11:25 am
Glasgow - Living with Secondary Breast Cancer 6th October

Hi We are also holding a 'Living with secondary breast cancer' course in Glasgow on Wednesday 6th October, with an optional follow-up day taking place on Wednesday 24th November As well as offering a welcoming space to share experiences, you can also...

Posted by UK Services Team BCC on Tue Aug 03, 2010 9:10 am with 0 comments

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Hi We are also holding a 'Living with secondary breast cancer' course in Glasgow on Wednesday 6th October, with an optional follow-up day taking place on Wednesday 24th November As well as offering a welcoming space to share experiences, you can also...

UK Services Team BCC, Tue Aug 03, 2010 9:10 am
Updated:Living with Secondary Breast Cancer Course 2010

Hi all We now have new dates and venues for the Living with secondary breast cancer courses. Manchester Day One 8th September Day Two 29th October Glasgow Day One 6th October Day Two 24th November London Day One 27th October Day Two 1st De...

Posted by UK Services Team BCC on Thu Mar 04, 2010 12:34 pm with 0 comments

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Hi all We now have new dates and venues for the Living with secondary breast cancer courses. Manchester Day One 8th September Day Two 29th October Glasgow Day One 6th October Day Two 24th November London Day One 27th October Day Two 1st De...

UK Services Team BCC, Thu Mar 04, 2010 12:34 pm
Capecitabine & diet

Hi, I wonder if anyone can give me some advice. I’m on my second cycle of capecitabine & lipatinib and just struggling with 2 side effects. The first is utter tiredness and lethargy and the other is terrible stomach cramps and violent bowel motions a...

Posted by Annie81 on Sat Sep 04, 2010 10:58 pm with 7 comments

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Hi Tina! Welcome. I got my recurrance and spread just 8 months after my mx. So happy I didn't have an immediate reconstruction, I can't imagine how you feel. I hope you're taking everything on board ok. I had 4 FEC and 1 Tax, but then my breast lum...

Annie81, Wed Sep 08, 2010 12:05 am
Feeling low

Hi All, I am feeling low today. I saw the onc today,and he confirmed that my bone scan revealed that I have extensive mets in my ribs on both sides. I am going to have six cycles of Zometa, the first one starting this Friday, and I have been taking T...

Posted by Marychris on Wed Apr 21, 2010 8:28 pm with 630 comments

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Hi all, Wayne, hope Maryanne is feeling more comfortable. Have been thinking of you both. Hoping chemo was OK to go ahead so that you both can feel that you are getting somewhere. Julie, a balcony sounds lovely, my mum always wants something like tha...

m1yu, Tue Sep 07, 2010 9:17 pm
Travel Insurance

Hello everyone! I am sure this topic has been discussed before but I thought I would ask again. Has anyone had any success in acquiring travel insurance when undergoing treatment? I have liver mets and am on capecitabine and funnily enough I have h...

Posted by Elsbeth on Thu Sep 02, 2010 12:36 pm with 4 comments

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Hi Elsbeth, I have started using http://www.insurancewith.com for my travel insurance, I don’t have secondary cancer, but I do know that they will cover people with secondary cancer and they do cover them in USA. They were on Jodie 1’s list that she ...

tess27, Mon Sep 06, 2010 1:35 pm
Meeting up in the Coventry area

Hello to all! Fridays at around 11 am ish at Yarn Gathering in Earlsdon to meet up, chat etc. You don't have to be able to knit. Welcome to all. I am just trying to start up this group and would welcome suggestions about how often we should meet. x sarah

Posted by cromercrab on Sat Sep 04, 2010 12:28 pm with 0 comments

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Hello to all! Fridays at around 11 am ish at Yarn Gathering in Earlsdon to meet up, chat etc. You don't have to be able to knit. Welcome to all. I am just trying to start up this group and would welcome suggestions about how often we should meet. x sarah

cromercrab, Sat Sep 04, 2010 12:28 pm
How do you cope with Fatigue?

Hi all I never thought I would be asking this question but what works for you? I just seem to be struggling to pace myself since I finished chemo in March. THis was my second lot of chemo, first lot for secondaries, and I have thrown myself back int...

Posted by SusieV on Sun Aug 22, 2010 6:28 pm with 11 comments

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Hi Susie V, CRF can be awful as many people don't really understand. I have good days /bad days. Good days I enjoy myself with my dogs and sheep, bad days I read, watch films, and try to cook ....slowly! I always try to walk somewhere every day someti...

hazelnut, Fri Sep 03, 2010 9:38 pm
Results today

Good morning everyone, I am so scared I have spent all morning trawling the web for side effects of every secondary I can possibly have and as usually done a good job in scaring me whitless. I get my CT scan results today and have convinced myself I ...

Posted by AnnB on Wed Sep 01, 2010 11:33 am with 25 comments

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Hi Sarah That's impressive - a lot going on. If you don't mind me asking what are they taking a biopsy of? The FEC really isn't all that bad. I think my se's were very typical - you have a week feeling hungover and headachey, and the other two week...

finty, Fri Sep 03, 2010 7:15 pm
travel insurance

not sure if I am posting this in the right place. moderators please forgive me if I am not. but I was wondering if anyone has had positive experience with any travel insurance companies regarding travel to USA, particularly Florida with regards to se...

Posted by snoogle on Sun Aug 22, 2010 8:34 pm with 11 comments

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I was feeling rather despondent having been quoted £7000 by one company to travel to the USA and refused by most others as I am currently on oral chemo. However, Insure Pink have just made my day with a quote of £196.60... Happy Days!! E :-)

Elsbeth, Fri Sep 03, 2010 2:15 pm
Travel Insurance

Hello everyone! I am sure this topic has been discussed before but I thought I would ask again. Has anyone had any success in acquiring travel insurance when undergoing treatment? I have liver mets and am on capecitabine and funnily enough I have h...

Posted by Elsbeth on Thu Sep 02, 2010 12:36 pm with 8 comments

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Wow....... Insure Pink came up trumps! £196.60 for 21 days to USA. I can't believe it!! (A bit of a difference from £7000 I was quoted by the other company.... and all the refusals I've received in between!) Thanks for all your tips! E x

Elsbeth, Fri Sep 03, 2010 2:12 pm
secondary breast cancer

Hi found out 2 weeks ago i have secondary breast cancer which was a big suprise ,i had a reconstruction 6th April they cancelled my follow up in the mean time that was all ok .I was going away in school hols for 3 1/2 weeks but before i went a bruise a...

Posted by baby on Thu Sep 02, 2010 8:17 am with 3 comments

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Hi Baby As AnnB has said a local recurrence is treated differently to secondary BC so hopefully it is 'just' a local recurrence. Although you will need treatment of some sort I hope it will work really well and you will not have any future problems. ...

nicky08, Fri Sep 03, 2010 8:19 am
scared

Hi everyone im lindsay i am 35 with 3children was diagnosed with secondary in liver 3cm tumour in april had 6 cycles of tax and herceptin it has now 1.2 cm by 1.3 only treatment now will be herceptin is that enough to stop it from speading or can it sh...

Posted by linzs on Thu Sep 02, 2010 2:06 pm with 3 comments

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Hi Linzs, I was diagnosed with secondary in liver in April, too. Had 6 cycles of FEC and now just "scar tissues" left. Now will do further investigation to see if more things need to be done. At the time, my onc mentioned RFA - Radio Frequency Ablati...

m1yu, Thu Sep 02, 2010 4:10 pm
DLA- SPECIAL RULES 3 YEARS ON

I have just been told to reapply for DLA ,which I have been receiving for 3 years under special rules, since I was diagnosed with BC, and lung mets. Obviously, I am still here, and wonder what anybody else's experience has been reapplying under special...

Posted by india1 on Wed May 19, 2010 5:27 pm with 99 comments

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Hi Dawn, Just thought I would let you know that thanks to your advice to look at question 4 and think about who to put down I have had a letter this morning to let me know that my DLA is staying the same. So to everyone who gets the letter to say the...

rozvi, Thu Sep 02, 2010 1:17 pm
Secondary Breast Cancer Awareness Day (13 October)

Hi everyone I posted some information about this in the "hot topics" section but just wanted to make sure you didn't miss it. http://www.breastcancercare.org.uk/forum/viewtopic.php?f=42&t=27652 Leah

Posted by Leah BCC on Thu Sep 02, 2010 10:25 am with 0 comments

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Hi everyone I posted some information about this in the "hot topics" section but just wanted to make sure you didn't miss it. http://www.breastcancercare.org.uk/forum/viewtopic.php?f=42&t=27652 Leah

Leah BCC, Thu Sep 02, 2010 10:25 am
Anyone else with liver secondaries?

Hi Dawn, I'd like to introduce myself as I think we're in a similar boat.... I was diagnosed at the end of march, with a 12mm lump and only a trace of stuff in the nodes. Under the microscope they identified it as stage 3, and I started chemo at the en...

Posted by Jacksy on Thu Sep 06, 2007 10:25 pm with 2047 comments

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Total lump in my throat this morning. She looked so smart and grown up in her school uniform. It took her quite a few attempts to get her tie right this morning! She went in with her head held high. The Head Teacher and senior staff were at the ent...

snoogle, Thu Sep 02, 2010 9:05 am
Going camping ... with bone mets and new hip - tips please!

Hubby feels that camping is one life experience that our little one (nearly 4) shouldn't miss out on ... and I'm inclined to agree, but I haven't camped since bone mets dx and am a bit apprehensive about whether I'll get a good night's sleep, given tha...

Posted by alisonm on Wed Sep 01, 2010 12:24 pm with 1 comments

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Hi Alison Hope you have a good time, we go camping (although can't comment on bone mets, cos haven't gone with those yet! Sorry can't recommend anything specifically as I always find our airbeds quite comfortable and the fresh air/outdoor lifestyle al...

Nicky65, Wed Sep 01, 2010 6:35 pm
Bone mets - please join in

I was dx with a bone met at original dx in Oct 09. Recently I have been shamelessly picking the brains of other ladies with bone mets wherever I find them, and have found the process very helpful and often encouraging. It has enabled me to be less pa...

Posted by finty on Mon Jul 26, 2010 1:44 pm with 97 comments

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Re DLA, I don't know what my Maccy wrote, but I got it within a week. I am now applying for the disabled railcard which will give me and accompanying person a third off fares. You just have to send a copy of your award letter. I am going to the Penny B...

cromercrab, Wed Sep 01, 2010 9:44 am
secondary breast cancer in the bones please help

hiya everone my names wayne, i am looking after my wife, ok heres the story too date ill do my best too keep short BUT my heads in my hands with despair, dec 2007, dignosed with 30mm lump in breast lymphs involved chemo untill april, then may had both ...

Posted by wayne1965 on Sun Aug 08, 2010 11:03 pm with 67 comments

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Hi Wayne, Two weeks is an awful long time to wait, and we seem to spend our lives waiting in this situation!! As the other ladies have suggested it is worth asking if the chemo can be brought forward,there may be a valid reason, and they may be allow...

Marychris, Tue Aug 31, 2010 3:19 pm
MRI AND CT SCANS

Hi everyone, wowo its blowing a gale here in Cheshire at the moment, brrr in bed early with bed socks. I get the results of my ct scan next week to see if progression has gone any further, up to now I only have spine mets confirmed thru MRI scan. I a...

Posted by AnnB on Sat Aug 28, 2010 11:22 pm with 9 comments

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Thanks ladies, I was just hoping that since they never mentioned any other spread at MRI that there wasnt going to be any. Will just have to do the wait and see game again. Your all so good with your replies, cheers Ann B x

AnnB, Sun Aug 29, 2010 10:23 pm
Letrozole

Posted on behalf of new user Skianne why have I not seen on web or other forams of people with grade 4 metastes whoms treatment is solely letrozole are we the condemmed to our fate alone?

Posted by Lucy BCC on Wed Aug 25, 2010 9:52 pm with 5 comments

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I reckon its if you are hormone positive then it should work. They wouldn't hang about giving you an expensive drug that wouldn't be appropriate. As I understand it there are strict protocols for what they give and when. x sarah

cromercrab, Sun Aug 29, 2010 1:49 pm
Hot flushes - Lady Care

Hi everyone, Hope you're all well and enjoying the first day of sunshine for what seems ages, down here in Kent anyway. I've been having terrible hot flushes which seem to be getting worse. My sister's been staying with me and her nurse gave her a La...

Posted by Steris on Sat Aug 28, 2010 12:35 pm with 4 comments

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http://www.breastcancercare.org.uk/forum/viewtopic.php?f=28&t=25828 Above is a long discussion on this.

Steph10, Sat Aug 28, 2010 10:00 pm
Some advice please

Hello, I am writing this question on behalf of my friend Lil, I have asked advice for her from you before, but she is staying with me for a couple of days which is lovely, but she would like to ask this: I was diagnosed with breast cancer in my right ...

Posted by BessieBoo on Sat Aug 28, 2010 10:14 am with 4 comments

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Found this on the internet:- Symptoms of low blood pressure - Symptoms of hypo-tension may include: Tiredness General weakness Light-headedness and fainting Blurred vision Dizziness Palpitations ...

Ann_04, Sat Aug 28, 2010 4:27 pm
Secondaries have made me go entirely gormless

..........why else would I have bought two evenings dresses and no sign of any event in which to wear them. Also I am feeling the effects of the post christmas credit crunch and had promised to be financially frugle. Is this a symptom of further mets...

Posted by celeste on Sun Jan 11, 2009 7:04 pm with 594 comments

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Just wanted to say that I had a quick read of the early pages of this thread (despite being a primary girl) when it popped up to the top yesterday and wanted to say a big thank you. I've not only had such a chuckle, but most particularly found the s...

Debs4, Sat Aug 28, 2010 11:53 am
local reoccurrance

hi everyone i am 58 and was diagnosed with bc fifteen months ago with changes in spine and cells in lung. had fec which wiped it out and put on arimidex. now breast lump has returned and having op last scan other bits were still clear but that was ma...

Posted by terri123te on Wed Aug 25, 2010 12:16 pm with 2 comments

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hi jan i think one of the reasons they havnt changed my hormones is because they havnt seen any evidence of the secondary returning but the primary has surley that is the same. have u got any secondarys along with your reoccurrance.

terri123te, Thu Aug 26, 2010 1:08 pm

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