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Forum: Men diagnosed with breast cancer

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Youngest man with BC Nicky

Hi, I posted on here a couple of years ago when my son was diagnosed at 24 with breast cancer, well just to update you, my beautiful son passed away on 19th july 2010 aged just 28, he was such a fighter and so strong, he fought everything that was thro...

Posted by irene46 on Sun Aug 01, 2010 5:02 am with 17 comments

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Hi Irene so sorry to read of your loss,my best wishes to you and your family at this time. More must be done to raise awareness of the dangers of male BC. Kind regards John

Johnnyb1, Wed Sep 08, 2010 12:00 pm
i think i have male breast cancer

hi every one ive not been well for a good few munths, it started in feburary i had a ultrasound off my right breast and it was diognosed as male gynecomastia i now belive it mite off been misdiognosed, i now have more simptoms abdominal pain sorness u...

Posted by phill2009 on Thu Aug 12, 2010 8:14 pm with 4 comments

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Hi Phil I'm sorry to hear about your problems. It does sound like the doctors are listening to some degree as you've had the CT scan and I hope the results will be good for you. I've had scans since my breast cancer diagnosis and know how awful it i...

elinda45, Thu Sep 02, 2010 1:03 pm
Newly Diagnosed

Hi everyone I have just been diagnosed with BC and would like to get in touch with any other men out thre who are in the same boat with a veiw to set up an informal help group Johnnyb1

Posted by Johnnyb1 on Sat Jan 23, 2010 8:07 pm with 29 comments

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Yes its a funny sort of day when you finish your treatment. You have wanted this day for so long, then, when it finally arrives your aprehensive, like you say I was also a bit emotional when I finished chemo, I had built up a relationship with all the...

Carolyn159, Wed Apr 21, 2010 7:24 pm
Where is everyone?

Hi I was just being nosey and popped in to see what happens here now - I have not been here for some 2 years - what is going on. Nobody using this site anymore. David - hi to all who remember me - please come back and say hello. David

Posted by dwrig128 on Tue Oct 28, 2008 5:16 pm with 7 comments

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Hope you are well I can only see your fist post,Why is this? Julie

jools4u, Sat Jan 30, 2010 1:28 pm
Research into men's experience of breast cancer

Men’s Experiences of Having Breast Cancer ARE YOU A MAN WHO HAS BEEN DIAGNOSED WITH BREAST CANCER? WOULD YOU BE WILLING TO SHARE YOUR EXPERIENCES AND TAKE PART IN RESEARCH AIMED AT HELPING OTHER MEN, THEIR FAMILIES, DOCTORS AND NURSES? This ...

Posted by Ann(BCC) on Tue Nov 18, 2008 11:15 am with 4 comments

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Johnny i hope your ok and coping with things x A friend of mine died recently of breast cancer (male) and its been widely publicised locally. I think its a good thing as there isnt much male awareness and i think men are prob worse at going to doc for...

signet, Sun Jan 24, 2010 8:30 pm
Breast Awareness/Breast screening for men

Hi everyone, I work for the Breast Health Promotion team at Breast Cancer Care. Our role is to promote breast awareness and breast screening. We are interested in knowing your views about breast awareness for men, in particular how to approach men a...

Posted by Marie BCC on Thu Jan 15, 2009 4:55 pm with 20 comments

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Chicken and egg question. Hi everyone, it's a long time since I posted on this site and I am sorry I haven't been more involved. Clunkshift says why not call it "chest" cancer....I think this is misleading because the chest is a very general term and...

BrianP, Thu Aug 20, 2009 1:15 pm
Hi xhgvking - Lance

Hi Lance, Happy New Year, and I really do hope it is for you. I trust that the threat of eviction has been resolved and that you and your little girl did have a happy Christmas. I have been off-line for a while because the chemo is playing havoc ...

Posted by cb102 on Sat Jan 05, 2008 9:26 pm with 13 comments

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HI LAnce Sorry I should have said Charley not Sophie, Sophie is my niece!

cb102, Sat Feb 14, 2009 9:47 pm
Is anyone a wife/partner/relative of a man with breast cancer?

My husband was diagnosed with breast cancer in August 07 and would love to share experiences with others in similar situations.

Posted by wendys on Sun Jan 27, 2008 3:21 pm with 1 comments

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Wendys, Your OH can ask me anything he likes. I may come across as grumpy and argumentative on other threads but i had no-one to ask when I wanted to know "is this normal" or "does everyone feel this effect?" and am very willing to talk about it to ot...

clunkshift, Wed Feb 04, 2009 10:33 am
Do any Men want to swap notes?

I would like to talk about BC, treatment and effects with any similar MALE sufferers. I had 22mm lump, mastectomy in Oct. 2007, 3/10 lymphs positive, 3 x FEC and 3 x Taxo, phlebitis, cording, wound abscess, arimidex and am now halfway through radiothe...

Posted by clunkshift on Fri Aug 01, 2008 9:27 am with 3 comments

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Hi, My name is Lance and just like to say sorry as i've not been on for such a long time, Hope you are coping with everything now,i have had the left side removed and am on tamoxifen for a 5yr period,and had 3wks of radio,unlike Nicky who posted befo...

xhgvking, Tue Sep 02, 2008 8:24 pm
spraed of breast cancer in the bone

Hello, my name is Rani. My husband was diagonised with breast cancer 5 years ago. He had surgery , chemotherapy and radiotherapy. He was then put on tamoxifen . Early on this year he started to suffer with back problems which gradually got worse. Event...

Posted by rani1 on Wed Jul 23, 2008 2:32 pm with 4 comments

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Oh Rani! What a very difficult time for you. You and your husband must be terribly worried. But as Karen said, oncs have been proved wrong before. I was dx in 05 and it had already spread to the bones - spine, ribs, hips, sternum, left humerus....

GrannyScouse, Thu Jul 24, 2008 9:53 am
Son with Breast cancer

Hi I hope that you dont mind me writing on your site, only I have been visiting your website for the past couple of weeks and wish that I had been brave enough to look sooner, my son Nicky (who has been on your site) was diagnosed with a very aggressiv...

Posted by irene46 on Mon Mar 24, 2008 8:25 pm with 27 comments

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Hi Irene ..sorry to hi jack your post but I wsa dx last october ... I have a son of 27 and a daughter of 35 and was gald it was me that got it and not them .It must be so hard for your to see your lovely boy go through so much and I wish both of you al...

mazaroo, Mon Jul 21, 2008 6:51 pm
help please

cut long story short iam going through chemo etc for breast cancer but while with my partner today i found a small hard lump about a inch from his left nipple. needless to say i was terrified but I never said anything think it was more of a shock than...

Posted by Joanne42 on Sun Jul 20, 2008 9:13 pm with 1 comments

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I think we all get paranoid about stuff once we get dx ourselves. Check it next week and if it's still there get him to have it checked - probably nothing but best be on the safe side. good luck with the rest of your treatment.

lilacblushes, Sun Jul 20, 2008 9:53 pm
Is any one younger?

Hello my name is Nicky and i am a 25 yr old male whom last year at the age of 24 was diagnosed as the youngest male ever in the u.k and possibly the world to have breast cancer. I have had all my treatment which was 6 months of chemo and 3 weeks of ra...

Posted by lucky25 on Mon Nov 19, 2007 12:33 pm with 25 comments

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I am not young and not a man but I really feel for you guys I hate this disease it certainly doesnt discriminate ...you all carry on with raising the male bc awareness and I am sure I am not alone when I pledge my support ...well done boys ..some of y...

mazaroo, Sat Jul 19, 2008 6:50 pm
on line wine bar

gentlemen, you are more than welcome to join us at the dew drop inn on the undergoing treatment bit of the site... jennifer

Posted by rjenr2 on Wed Apr 23, 2008 11:19 pm with 1 comments

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oi - are we still allowed to have male strippers if you extend this invite? Careful men - it could be you! We have been moved to Chit Chat & Fun - which is appropriate You are very welcome to join us, drink, have a laugh, no hangover - it's g...

WestsideSue, Thu Jun 05, 2008 7:49 pm
Im scared are any of your stories like this? Help

I am a 25 year old male over weight used to smoke. About four months ago my left nipple started hurting i noticed there was a lump underneath it. At first I thought it was nothing but after a month or two i started worrying. I ignored it until a few we...

Posted by jonnoj on Mon Apr 28, 2008 11:57 pm with 10 comments

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Just looking in for the first time in a couple of days. So thrilled for you Jonnoj that you can have your peace of mind back, and Patsy I hope it can be the same for you. Whatever the outcome you know we are here for you.

ForumMember, Sun May 04, 2008 9:43 am
Fashion Show

Hi to all you wonderful ladies that were there,hope you all got home safe and well, i'm looking forward to when we all meet again especially the three chipmunks lol (the three smallest). It was fun and keep in touch, all the best and take c...

Posted by xhgvking on Thu Apr 10, 2008 10:16 pm with 0 comments

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Hi to all you wonderful ladies that were there,hope you all got home safe and well, i'm looking forward to when we all meet again especially the three chipmunks lol (the three smallest). It was fun and keep in touch, all the best and take c...

xhgvking, Thu Apr 10, 2008 10:16 pm
Breast cancer in oct

Hello everyone, I was wandering if any men have applied for this years breast cancer fundraiser and if any one has been a previous model? Would love to hear of any experiences Nicky

Posted by lucky25 on Thu Feb 28, 2008 6:38 pm with 1 comments

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Hi Nicky, it's Lance sorry iv'e not been on for a while but i'm not on line as yet,not for about the next two months,anyway yes iv/e got through the first stage of the fashion show and have to go to london in April,hope your there on the same day as i...

xhgvking, Tue Mar 11, 2008 10:25 pm
Should I insist my son gets checked?

Hiya I think Im getting too used to posting new convos already!! But hey........ Since Ive got bc and secondaries, Im already aware that my son is now at higher risk, but how do I go about getting info or setting up consult for him. Hes 17yrs old, ...

Posted by gemcl on Tue Feb 05, 2008 4:13 pm with 9 comments

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I personally think that men should also get checked for braca genes as although their risk of getting breast cancer is small, they can transmit these faulty genes to their daughters[ 50% chance] I heard in news that a couple had pre natal diagnosis [ l...

Neelima, Tue Feb 26, 2008 7:34 pm
Breast Cancer Care's Fashion Show

Hi, My name is Stephanie and I work in the Communications team at Breast Cancer Care. We are always keen to hear from men with breast cancer who would like to share their story and I wanted to let you know that we are currently looking for guys to a...

Posted by CommunicationsTeam on Thu Jan 31, 2008 1:20 pm with 0 comments

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Hi, My name is Stephanie and I work in the Communications team at Breast Cancer Care. We are always keen to hear from men with breast cancer who would like to share their story and I wanted to let you know that we are currently looking for guys to a...

CommunicationsTeam, Thu Jan 31, 2008 1:20 pm
Message for Lance

Hi Lance, I was just browsing through the posts in an idle moment (ie work got too boring), and found your remarks about father to daughter risk, and at what age should your daughters get themselves screened? If it's any help, My GP told me that my...

Posted by RoadRunner on Tue Jan 15, 2008 12:37 pm with 0 comments

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Hi Lance, I was just browsing through the posts in an idle moment (ie work got too boring), and found your remarks about father to daughter risk, and at what age should your daughters get themselves screened? If it's any help, My GP told me that my...

RoadRunner, Tue Jan 15, 2008 12:37 pm
Is Face & Neck Itching Normal?

Hi to all, Hope i,m not being silly here with worry but i,ve recently developed a cold sore which i,ve never had in years, also my neck & cheeks itch like hell, it,s so difficult to shave because it makes me realy sore. The itching is so bad i make ...

Posted by xhgvking on Tue Jan 01, 2008 8:46 pm with 6 comments

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Hi Lance, I've been on Tamoxifen since October, and I get itching all round my torso. It seems to come & go randomly, but it's been a lot better since I started using a moisturiser regularly so it may be due to dry skin? That is one of the side ef...

RoadRunner, Wed Jan 02, 2008 1:39 pm
Feeling Low At Christmas

Hi all, Normaly i've been so strong & supportive on this site but as you all know to well we still get depressed, On friday i have my first check up with the oncologist,but it's getting me on a low amongst other issues, i'm due to be evicted with...

Posted by xhgvking on Mon Dec 17, 2007 8:36 pm with 18 comments

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Lance for the 12.5 hours a week for 38 weeks of the year you do not pay anything.....you do not have to use all your free provision you can for example use 2.5 hours a day [ which is classed as a session ] or spread your allocation of 12.5 over 5 days....

karen, Tue Dec 18, 2007 9:25 pm
Tamoxifon side effects?

Hello everyone, Was just wandering if any of you suffered mood swings with tamoxifon because i dont know about you lot but i get really stressed on them and feel like smashing everything!!! Obvisouly i dont but really dont want them no more!! Nicky

Posted by lucky25 on Fri Dec 07, 2007 11:38 am with 2 comments

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Hi Nicky, Great your back & hope all is well, Yes i also get mood swing,s but that come,s with the medication i'm afraid. I find that being in the company i like most reduce,s my mood,if i'm with my mother then i tend to loose it straight away,bu...

xhgvking, Fri Dec 07, 2007 3:44 pm
Worried Male

Hi first of all i appreciate all the ladies, given me some advice and helping! i was told this is the place i should be to feel more at home, as a male concerned about breast cancer hopefully alot of my questions will be answered here, sorry if i moan ...

Posted by carlcarl on Fri Nov 23, 2007 9:51 pm with 8 comments

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Hi Carl, have you looked on www.cancerbackup.org.uk ? this has a great information area on all cancers, and all the different types of bc, it also has a forum as well were quite a few men post, hope your feeling a little bit more reassaured, everyone i...

alisoncamera, Sun Nov 25, 2007 6:06 pm
Have or did your taste buds change?

Hi, Just would like to know if anyone has lost taste buds through having chemo and if there is food you cant eat now? Me i cant eat mash or eat mints or soup beacuse it makes me feel sick to this day!! Nicky

Posted by lucky25 on Wed Nov 21, 2007 3:01 pm with 7 comments

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Hi Ladies When I was on epirubicin, everything I ate tasted salty - it was horrid. Now on CMF and everything taste sweet! Very bizarre! From drinking about 10 cups of coffee a day prior to chemo, I now only have about one a week and don't particula...

Carly72, Sat Nov 24, 2007 8:06 pm

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