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Lobular cancer and alcohol

Has anyone seen the papers today with the report on alcohol and lobular cancer? Its stating a study of 90,000 women in the US has shown that even drinking one glass of wine a day can lead to a 1.8 times chance of developing lobular cancer once menopau...

Posted by gracet on Tue Aug 24, 2010 9:35 pm with 23 comments

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although there may be an increased chance of getting BC if you drink alchol this will be for women who drank before diagnosis... its not research on whether you would get a subsequent cancer, a recurrence or secondaries if you drink alcohol. the singl...

Lulu34, Thu Sep 09, 2010 3:26 pm
electronic beauty therapy

Hi Sorry to be an airhead; but appearances are important, so while off work having treatment (rads) I decided to use the time to do something about the increasing wrinkles developing on my face (age related). I booked in to have CACI treatment, but was...

Posted by nidavellir on Thu Sep 09, 2010 6:02 am with 2 comments

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Hello! I was due to have a spa day including a similar treatment to Caci,plus lots of massages. As I have secondarys in lymph nodes and because some of the massages were to increase lymphatic circulation & drainage I decided to check the treatment was ...

saj, Thu Sep 09, 2010 10:17 am
gabapentin for hot flushes on tamoxifen?

I've just been prescribed this drug, an anti-epileptic, to help with my non-stop hot flushes which are being caused either by tamoxifen which I've been on for 7 months or by the chemo destroying my ovaries and dumping me into the menopause 9 months ago...

Posted by leucite on Mon Sep 06, 2010 2:54 pm with 4 comments

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Good Morning All My onc suggested Clonodine for my flushes and I had to refuse after checking the side effects. I know they always say 'possible' but I found them quite scary. I have been on Tamoxifen for 1 year now and the flushes have settled to an...

Teecee, Thu Sep 09, 2010 9:33 am
Tongue problems

Hi Ladies I'm new to this site. Just wondered if anyone has had problems with their tongue! The tip of my tongue feels as if I have burnt it on hot food,it's been like this for about 4-5 weeks. My oncologist has examined it and found no ulceration a...

Posted by LizzyLou on Thu Sep 02, 2010 9:11 pm with 11 comments

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Hi Ladies, I said I would report back on my blood test results for my 'burning' tongue: they are normal and I am not deficient in iron or vit B12. So, I am not sure what to think now. I will see my GP, bearing in mind Hazel's findings and Cathy's com...

LizzyLou, Thu Sep 09, 2010 9:33 am
OSTEOPOROSIS - any advice welcome!

Dear all, I was dx about 6 yrs ago, bilateral mx, removal of ovaries, early menopause aged 40 yrs, treated with Arimidex. After I had my ovaries removed in 2005, I had a DEXA scan to assess my bone density and was told by my GP that all was "normal"....

Posted by happyshopper on Sun Aug 22, 2010 11:43 pm with 39 comments

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Hi Carol if you can get hold of your 2nd results I found he National Osteoporosis help line really helpful in helping me with the results. But my Onc had sent me a copy anyway ( I signed up to get copies of all the letters sent to my GP) but this one c...

libby 2010, Wed Sep 08, 2010 10:36 pm
Arimidex any information on SE's?

Hello, I started taking Arimidex tabs yesterday. I wonder if anyone out there can give me any information about their SE's on these tablets. I have been dreading having to start taking them as lots of people seem to have varying SE's on all of the diff...

Posted by izzypal on Tue Jul 13, 2010 9:07 pm with 120 comments

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Hi everyone. Love the low calorie advice! I haven't had much problem with hot flushes but finding weight quite an issue. I'm trying really hard to loose the chemo weight but nothing is happening. I do think the arimidex changes our metabolism.

Petal5, Wed Sep 08, 2010 7:14 pm
Tamoxifen and Glucosamine

After a year of Tamoxifen my joint stiffness is getting worse. Does anyone know if Glucosamine affects tamoxfine action, as I am tinking of taking it. J

Posted by dolphin1 on Tue Sep 07, 2010 1:29 pm with 3 comments

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I asked my breast care nurse if it was okay to take glucosamine as my physio had recommended it. She said that anecdotally she had heard from other patients that it was effective in helping with joint pain and it was fine. If you're not sure give yo...

elinda45, Wed Sep 08, 2010 9:00 am
Anyone on Zoladex and Tamoxifen, and effects of oophorectomy

Hello As I suddenly had a period after 2yrs without, I recently had a hysteroscopy and curetage which found normal tamoxifen growths in my womb. Am ER/PR pos and now aged 41. Had first zoladex last month and carried on taking tamoxifen but today have ...

Posted by Kindensurprise on Mon Sep 06, 2010 11:08 pm with 3 comments

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HI Nicky and Flora Many thanks for your messages. I must say it was a surprise to be invited to swap to letrozole but I guess with my ovaries switched off by zoladex I am effectively post menopausal so need an AI rather than tamoxifen. I had a new f...

Kindensurprise, Tue Sep 07, 2010 8:39 pm
Femara

Hi I started Femara 3 weeks ago and I am doing really well with it so far. My only side effect seems to be that I am going to the toilet a lot more, I also have a very dry mouth. I read these are 2 of the side effects of Femara. Has anybody had the ...

Posted by weeannie on Mon Sep 06, 2010 10:15 am with 5 comments

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Hi all, I've been on femara (letrazole) for 10 months now and haven't really noticed an increased thirst. The most significant side effect is small joint aches. These have eased recently but my fingers and ankles are still very stiff first thing in the...

louisef, Tue Sep 07, 2010 7:58 am
Tamoxifen - Heel pain link?

I've seen a few people here say that tx causes pain in the feet, particularly heel area. I've suffered severe heel pain (been seeing a surgeon who administered steriod injections to achilles and plantar ligagment) to try to treat what feels like painf...

Posted by 00Jan on Mon May 31, 2010 9:04 pm with 19 comments

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Hi finty, I was fine with your step part and pleased you posted it as it led to my improvement. Prob me not describing it to the pod. Thanks Lily

Lily200, Sun Sep 05, 2010 11:35 pm
Hormones to shrink a tumour?

Hi Has anyone experience of hormone therapy to shrink a tumor before surgery? My oncologist said that my tumour has a good chance of shrinking with chemo. But he says hormones could be an option (I will have to take them anyway at some point) and he th...

Posted by bluebird on Sun Sep 05, 2010 11:50 am with 0 comments

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Hi Has anyone experience of hormone therapy to shrink a tumor before surgery? My oncologist said that my tumour has a good chance of shrinking with chemo. But he says hormones could be an option (I will have to take them anyway at some point) and he th...

bluebird, Sun Sep 05, 2010 11:50 am
Zoladex/Tamoxifen side effects at this stage?

Hi I wonder if anyone can help. I've not been on the forums for a long time- I used them when I was first diagnosed and through surgery, chemo and radiotherapy but as I have been feeling well I have been trying not to think about everything too much. I...

Posted by YCM1980 on Thu Sep 02, 2010 2:09 pm with 5 comments

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hi new to this site but was browsing through and saw ur comment.i was on tamoxifen to begin with but honestly made me so depressed with terrible dark thoughts.now been on arimidex and zoladex for 7 mnths.mentally better but hot sweats r a pain.about to...

tina teaspoon, Sat Sep 04, 2010 2:36 pm
Anyone had tamoxifen withdrawal symptoms?

Hi, I haven't posted on this site for a long time bit it's really good to know it's there. I'm finishing my 5 years on tamoxifen now; had terrible trouble getting on it in the first place (felt very tired, weepy, couldn't sleep and as for my memory ......

Posted by chatta on Fri Sep 03, 2010 2:01 pm with 0 comments

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Hi, I haven't posted on this site for a long time bit it's really good to know it's there. I'm finishing my 5 years on tamoxifen now; had terrible trouble getting on it in the first place (felt very tired, weepy, couldn't sleep and as for my memory ......

chatta, Fri Sep 03, 2010 2:01 pm
Question

Posted by linzs on Fri Sep 03, 2010 11:06 am with 4 comments

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HI only had 1 herceptin on its own but no side effects that i csn say still suffering from chemo s-e thanks for your replies

linzs, Sat Sep 04, 2010 12:57 pm
What is the risk if I don't take Tamoxifen?

Hi, I've recently finished chemotherapy and am just starting radiotherapy after my lumpectomy in January. The cancer was Grade 3, about 30mm, but had not spread to the lymph nodes. I'm due to start on Tamoxifen soon, but for some reason I'm getting col...

Posted by Szecsi on Fri Sep 03, 2010 1:17 am with 4 comments

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Thanks for your advice, I'll have a go on the calculator and have a chat too. My feeling is that the medical staff have my best interests at heart when it comes to survival, but it is down to me to decide about risk and quality of life. This should def...

Szecsi, Fri Sep 03, 2010 9:19 am
Side Effects of Tamoxifen - help please!

I started taking Tamoxifen in March (5 months ago)and have not had too much bother until recently. I have extremely heavy but short-lived (thankfully) periods! Is this normal? I feel like I have to camp out near a toliet for two days, then it all ca...

Posted by canarymaz on Tue Aug 31, 2010 9:30 pm with 6 comments

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Thanks for all your tips. I looked and found the link for heel pain :http://www.breastcancercare.org.uk/forum/tamoxifen-heel-pain-link--t26507s12.html Its kind of nice to know that I'm not going mad and blaming everything on the tamoxifen. I'm seei...

canarymaz, Thu Sep 02, 2010 8:09 pm
when will my body be back to "normal"?

Hi All I have been on Zoladex for 20 months and i have had to come off it as of the side effects. They have got so bad I cant even have sex as its causing trauma to my lady bits because of lack of oestrogen, I also have osteoperosis and everything els...

Posted by mairead on Tue Mar 02, 2010 1:59 pm with 4 comments

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When I stopped taking Arimidex three months ago,(because of the s/e) the effects wore off remarkably quickly. The headaches and tiredness disappeared almost straight away. The aches in my joints were almost gone in 10-14 days, just the odd twinge and e...

jenh, Thu Sep 02, 2010 1:34 am
Best time to take Tamoxifem?

Hi I have just recieved my first prescription for tamoxifem, is there a best time of the day to take it? i am on 20mg once a day. Sharon x

Posted by sharon69gog on Wed Aug 25, 2010 5:54 pm with 13 comments

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Hi, i have been on Tamoxifen for 3 months now and i was taking them at 9pm. Until recently i thought the sleepless night was due to all the treatment that i have had. Since reading other peoples experiences i am now changed the time that i take the Tam...

Lol1968, Wed Sep 01, 2010 10:32 pm
Need a suggestion for a new Tamoxifen brand PLEASE

Hi I am currently on Nolvadex D as the generic brand gave me awful SE. My chemist did stock pile me some but now it's all gone :-( Please can someone suggest a good alternative to ask for? (I have read about soltamox and Teva, so would apprecaite you...

Posted by KatieSian on Wed Aug 25, 2010 5:57 pm with 10 comments

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Thanks Lily, getting my local chemist to look into this x

KatieSian, Wed Sep 01, 2010 6:00 pm
Beginning to feel like a crocodile!!

I'm into my 3rd month of Tamoxifen and my skin is getting really awful!! Resembling a scaly croc!! I have had a couple of really itchy rashes around my neck and top of back also, which managed to clear up with a steriod cream and e45. But, having to co...

Posted by slatch on Sat May 08, 2010 11:55 am with 19 comments

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My friend has Eczema and swears by Beauty Oil from Neals Yard. You take a couple of teaspoons a day (orally) - it's a mixture of flax oil, evening primrose oil, and some other oils and stuff that nourishes the skin from the inside apparently.

scaryfox, Wed Sep 01, 2010 1:13 pm
Tamoxifen and eye-sight tests

One of the little known side effects of taking Tamoxifen is that it can form 'deposits' at the back of the eye. I've been having annual eye-tests since taking Tamoxifen. I'm over sixty so my eye tests are free but I'm not sure if treatment with Tamoxif...

Posted by AlexG on Mon Aug 30, 2010 2:39 pm with 4 comments

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Just bumping this up in the hope someone can help me. Thaks, AlexG

AlexG, Tue Aug 31, 2010 2:38 pm
Arthritis, unsympathetic doctor and feeling hacked off!

Am really annoyed with my GP. I went along today as, since coming off Tamoxifen in April, I have been experiencing stiffness and aching in my feet. I reckoned there was likely to be some sort of connection. She was very dismissive. She hardly exami...

Posted by Hatts on Mon Aug 16, 2010 7:16 pm with 12 comments

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Amazing what stories come out of a thread about sore feet!! Love it Val!

Hatts, Sun Aug 29, 2010 4:28 pm
having trouble getting hold of Letrozole??

My local chemist has been unable to get hold of Letrozole for me and says that there is a problem with the supplier. This isn't the first time so I wondered if anyone else had heard of a problem - they say that this is a national thing.

Posted by erinpsi on Thu Aug 26, 2010 2:10 pm with 9 comments

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when I switched to femara the hospital pharmacy told me that there can be a problem with supplies of femara and gave me a note and telephone number for my local chemist to ring if this happened. The chemist already has 5 patients collecting femara from...

Lily200, Fri Aug 27, 2010 11:30 pm
Zoladex or Oophrectomy

Hi everyone. My Oncologist has given me the option of continuing three monthly Zoladex implants or having keyhole surgery to have removal of ovaries. Have been on Zoladex for five years. Had a pause in treatment and had hormone levels tested but then Z...

Posted by Myfanwy on Wed Aug 25, 2010 3:15 pm with 9 comments

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I had a bilateral salpingo oophrectomy in June because I was allergic to tamox. Turns out I'm allergic to Arimadex too. However the op was fine although I had related complications with my bowel a couple of weeks afterwards. Fingers crossed this is now...

KatieF, Fri Aug 27, 2010 9:37 pm
HOW DO WE KNOW IF IT HAS RETURNED?

I know this might seem a ridiculous question, but having read a lot of posts on this forum from ladies at different stages of treatments I have often wondered how do we know if the cancer has come back or not, espicially if we are feeling well. I fini...

Posted by MostonMauler on Wed Jul 21, 2010 1:52 pm with 47 comments

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Hi ladies, I have just discovered this thread and wanted to comment on something that schmooley said earlier about reading your notes. I did the same thing when hand carrying my notes between onc and PS. And then wished I hadn't. My prognosis is ac...

jacqui37, Fri Aug 27, 2010 9:36 am

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