Campaigning to improve care for secondary breast cancer

While we offer unique services for women with secondary breast cancer, we know that most people are still not receiving the ongoing, specialised support they need when they are diagnosed with this disease.

Incurable shouldn't mean unsupported. We want everyone diagnosed to have a Secondary Support Package from the point of diagnosis to help them to live well with breast cancer.

Jo with her mum and dad, Norman and Pam
My whole life and the lives of those around me fell apart and changed forever. Following my diagnosis, in the space of a 20-minute consultation, I felt I lost my identity and my future with those I love.

Jo, diagnosed aged 40

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Improving care and support for secondary breast cancer

Secondary Support Package

A Secondary Support Package would give each patient:

  • Access to a designated Clinical Nurse Specialist with appropriate skills, knowledge and experience of secondary breast cancer.
  • A discussion of their emotional, physical and information needs with a healthcare professional through a Holistic Needs Assessment throughout treatment.
  • A Treatment Summary at the end of each significant phase of treatment.
  • A referral to a tailored health and well-being service which includes psychological support and opportunities to meet others with secondary breast cancer.
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The need for better care

72 percent

of hospital organisations in England, Scotland and Wales do not give people access to a dedicated secondary breast care nurse.

Two fifths

of hospital organisations across the UK could not tell us how many secondary breast cancer patients are currently under their care.

70 percent

of hospital organisations across the UK do not assess people’s emotional and physical needs when diagnosed and as their treatment changes.

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Download our reports

Throughout our Secondary. Not Second Rate. campaign we've put together reports of the standards of care for people living with secondary breast cancer.

Over 2,100 of you wrote to your local politician to ask if they would support the need for a Secondary Support Package. With your help, over 60 politicians now support our call for change.

Campaign successes

Caroline Jones AM for Wales

Wales

The Welsh Government has now established a Task and Finish group to assess the need for secondary breast cancer nurses.

Lisa Cameron MP Scotland

Scotland

The Scottish Government is producing recommendations to improve secondary breast cancer services following our campaign.

Steve Brine MP

England

The NHS England Long Term Plan included a commitment to provide nursing support for people with secondary cancers, such as secondary breast cancer.

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Next steps

nurses discussing

Workforce Implementation Plan

We will be campaigning to make sure this includes investment to ensure additional secondary breast cancer Clinical Nurse Specialists can be recruited and trained.

Campaigning for secondary breast cancer

Secondary breast cancer data collection

We will be making the case to ensure data is routinely collected in order to identify how to improve support for people with secondary breast cancer.

campaign with us

Join the Campaigns Network

Want to get involved? Become a campaigner and join the thousands of people helping us to improve the lives of people affected by breast cancer.  

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Get support for living with secondary breast cancer

Get support

If you've had a secondary breast cancer diagnosis and would like information or support, find out more about our Living With Secondary Breast Cancer meet-ups.

Find out more

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