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Secondary. Not second rate.

About | Act today | Get the facts

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Dawn standing with 'can I be certain of your support' sign

When time is uncertain, women with secondary breast cancer need to be certain of your support. 

There are so many uncertainties for women who have incurable secondary breast cancer, like Dawn.

They don’t know how many birthdays, celebrations or anniversaries they have left. They wonder whether they’ll be able to go on another holiday. Whether they’ll see many more of their children or grandchildren’s school plays. When their drugs will stop working. 

Two thirds of Hospital Trusts don’t know how many of their patients have secondary breast cancer, making it more difficult for them to plan and provide the right care. 

This is why we're campaigning for change – to make sure that women with secondary breast cancer no longer get second-rate care. These women already face so much uncertainty, we want to make sure that getting care and support is something they can be certain about.

We need your help to make this happen.

Act today and join our Campaigns Network.

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We want to make sure that women like Vicki, Dawn and Claire can be certain they will get the care and support that they need.

Vicki holding her young daughter

'The worst feeling is that your child will need you and you won’t be there.' Vicki, 34

Dawn staring at the camera

'I was just in absolute despair. Is it really incurable? My God, I’m gonna die.' Dawn, 54

Claire looking downwards

'You’re told you might have some time but you’re not told how much time.' Claire, 43

 

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Get the facts

Secondary (metastatic) breast cancer is when breast cancer cells spread to other parts of the body, such as the bones, liver, lungs or brainAround 11, 600 women die from secondary breast cancer each year. It can be treated and people can live with the disease for a number of years, but it is incurable.

We know that far too many women with secondary breast cancer aren't getting adequate care and support when they need it  most. 

Our recent campaign discovered that many Hospital Trusts aren’t recording when people are diagnosed with secondary breast cancer. This means there is no accurate figure of the number of people diagnosed or living with secondary breast cancer, and this can make it more difficult for Hospital Trusts to plan services.

We found that only one third of Hospital Trusts are collecting data as they should be.

Download our Who’s Counting? reportFind out why hospitals aren’t recording data properly and what needs to be done to make sure everybody diagnosed with secondary breast cancer is counted.

This report is the second in a series looking at what it's like to live with secondary breast cancer.

Download part one: Diagnosis 

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Is your hospital counting?

Our map shows each Hospital Trust in England and whether they are recording the number of people diagnosed with secondary breast cancer. Click on the pink button to explore the map.

Map key

Hospital Trust is collecting data

Hospital Trust is not collecting data

No response received

Hospital Trust is partially collecting data

For more information on each hospital, click on the corresponding pin.


The map shows the information we’ve received from Hospital Trusts that manage several hospitals, so you may not see your individual hospital listed.

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Get support

An orange breast cancer care helpline iconThis campaign is all about the care and support people with secondary breast cancer need to live well. 

If you're looking for support like this, we're here to help.  We can help you connect with others who have secondary breast cancer, online or face to face so you feel more supported and less alone. 

When time is uncertain, you can be certain of us. Get support

 

Get the latest breast cancer updates